Dementia: 3 Ways to Redirect

More excellent advice from the Alzheimer’s Reading Room:

‘3 Ways to Redirect a Dementia Patient and Embrace Reality

 Some caregivers find it difficult to redirect Alzheimer’s patients – why not try these simple methods?
Caregivers find it difficult to redirect Alzheimer's patients, why not try these methods?

By Bob DeMarco
Alzheimer’s Reading Room

Learning how to redirect an Alzheimer’s patient is often difficult. The concept itself is difficult to grasp.

Learning how to embrace the reality of a dementia patient is also difficult.

Learning how to redirect a person living with dementia and how to embrace reality are essential components of effective caregiving.

Learning how to do this takes patience and a little practice.

When ever possible you should include these two nonverbal communication techniques before redirecting.

First, if close by take the person living with Alzheimer’s Hand. Second, make sure you have their attention and smile. Also, try to respond in a steady voice.

1. I’m hungry, I’m starving

My mother would utter those words over and over every day. In the beginning I would inform her that she had just eaten (often true), that she could not possibly be hungry, or she had already eaten 3 times that day.

What I failed to realize in the beginning was my mother: could not remember she had just eaten, could not remember what she had eaten that day, and that, in fact if she said she was hungry – she was hungry.

I failed over and over in the beginning to embrace my mother’s reality. If she said she was hungry – even right after she had eaten – then she was hungry. Who was I to determine how she was feeling? Aren’t we all entitled to our own feeling, or for that matter beliefs.

Whenever I chastised my mom and told her she couldn’t be hungry it usually ended in a horrible episode. My mom would go into her room and refuse to come out. I would be left alone feeling bad, and having a bad day.

Then one day I discovered the solution by accident. Dotty said, “I’m hungry, I’m starving.” I looked at her smiled and said, “okay, can you give me ten minutes to finish what I am doing and we will eat”. She smile back and said, ‘okay”. That was that.

She didn’t ask again and seem satisfied with my answer. I had embraced her reality, and that was what she really needed.

You might be able to use this form of redirection in any number of situation. Smile and embrace the reality. You might be able to get away with one word – okay.

How to Get Answers To Your Questions About Alzheimer’s and Dementia

2. The distant and no longer past as reality.

My mother did this one over an over with my sister but never with me – go figure?

My mother would tell my sister that she wanted to get Volkswagen (VW) fixed so she could start driving it.

The VW in question had not been around for 30 years. It no longer existed. On top of that, my mother was no longer driving and had not driven in many years.

My sister would smile and respond in her normal voice, “okay, let’s do it tomorrow”. Close enough to the 3 little words rule.

My mother would accept this with out question.

In this example my sister embraced my mother’s reality. That the VW actually existed, and she offered a solution. However, my sister would not address the issue of “driving”. She knew my mother was no longer driving, and, had learned it rarely works when you correct a person living with dementia.

In this example, a bit more complex there are 2 issue. A car that no longer existed and driving. My sister embraced the key issue, and resisted the urge to inform my mother she was no longer driving – she realized it really didn’t matter.

3. Use the Hook

Sometime my mother would do or say something that was not really conducive to redirection. In these cases I learned to use the “hook”.

I might say out of the clear blue sky, mom, why don’t we have some potato chips? This worked every time. My mother loved potato chips.

I had other hooks. For example, would you like some ice cream? Answer every time, yes.

And sometimes I would just change it up completely. Mom, let’s go to McDonald’s and get some french fries. I used examples like this one when my mother seemed to be getting – very negative. I wanted to get her of the house and into some bright light – or just plain out of the house for a change of mood and environment.

I learned over time how to listen to my mom. Once I made it to Alzheimer’s World I learned how to accept that what she was saying was true – it was true to her. I no longer had an incessant need to correct her.

It was no longer all about me, it was about her. Whatever was happening in her world was in fact reality. So even though it took me a long time to embrace her reality, once I did I felt a lot better. Calmer and happier.

Over time I learned how to keep it simple. It seems “simple” really works well in Alzheimer’s World.

Touch, Smile, be Patient, don’t be Judgmental and somehow, someway, life starts improving.

As I write and think about this I continue to be amazed that if you try real hard – it doesn’t work well. If you keep it simple and easy – it does work well.

It now seems to me that it should be easy to learn how to redirect, and how to embrace reality – it isn’t. But once you do, you can then look in the mirror and laugh at yourself. That is exactly what I did’.

I am about to Email this post to Maureen’s eldest son as he will be on his way to visit us soon.  I hope he finds the above helpful because her presentation has changed so much since he last saw her 

Dementia: Time For Straight Talking

 

My Cyber friend Kate Swaffer has posted a very helpful blog this morning which is a reality check for yours truly.  The following extract has helped me arrive at an unwelcome conclusion:

‘I’ve not been blogging much lately, barely monthly here, and certainly not daily on my other blog like I used to. I suppose though, it is good to report the reason why is I am actually too busy living beyond dementia to have the time!

However I am keeping up with Prof. Dale Bredesens’ latest research, and do recommend you read about it, in particular if you or someone you know is newly diagnosed with a dementia. This approach may be too late for those in the later stages of dementia, but my intuition, nursing background, own personal experience with dementia and my commonsense tells me it is on the right track’.

It is time to accept that now Maureen has a diagnosis of moderate to severe dementia opportunities for neuroplasticity have passed and minimising distress is our mission.

The Best Interest Meeting is looming as an opportunity to discuss options for Maureen’s future care and welfare.  This will be a time for all parties to put their cards on the table and support Team Collins to have the best possible life together.

Dementia: Just Wants To Sleep

There seems little point in trying to encourage Maureen to go to Day Care at the moment: all she wants to do is sleep.  It looks as though any activity, even chatting to a Carer, is exhausting.

Concerns about ‘Best Interest’ may be academic as Maureen’s deterioration continues with no sign of a plateau.  My prime focus remains to minimise distress and try to find little things that bring a smile to her face.

 

Dementia: Notice To Quit

Maureen often wants to go back to the house where we used to live in Coventry.  I heard from my sister in law yesterday that would have meant we would have been five minutes away from the Nursing Home my brother is being moved into on the 15th of August.  It is a shame we won’t be near to John because my Big Brother is a good man.

The circumstances of his move are unpalatable: he has been given notice to quit his current Nursing Home.  The reason is quite simple – Jean his wife has raised questions about the level of care.  In the last month or so John has been plagued by oral thrush and nursing staff at his Home have been complacent about his condition.

John has advanced Alzheimer’s he is on Continuing Health Care and is no longer able to look after himself.  The price of Jean raising questions about his care: EVICTION!

How sad that elderly people who are not able to speak up for themselves are neglected.  It’s a shame we won’t be as close by as Maureen would have liked but I look forward to seeing my brother in his new Home as soon as possible.

Dementia : TED To The Rescue

A TED Talk has helped me this morning by reminding me that happinnes is all in your mind:

My Buddhist colleagues have always encouraged me to accept that dementia presents many opportunities for spiritual growth.

So it’s important to count my blessings and face whatever lies ahead with a kind heart.

 

Dementia: Needing A Little Bit Of Luck

I am exhausted after another night with little sleep.  Maureen is finding it difficult to rest because of the back pain she is still experiencing following her fall in Ladysmith Road Care Home.  I am hoping that paracetamol and pain relieving gel will help her to get a little more sleep: I have given up at 4 am after another interrupted night. and drafted this post.

My plans about a bed at The Royal Court Care Home are in tatters.  The room was excellent but we have now decided that the stairs present a risk to her safety.  My contingency is to see if Day Care is a viable option until a downstairs room becomes available.   There is a steep hurdle to be overcome before my aspirations for Maureen to have several hours at the Home over the weekend become a reality: shifting her off the sofa.

I am hoping that we can cajole Maureen to Royal Court on Friday for assessment.   There are ‘cunning plans’  in place with Chloe our carer,  Maureen’s son and the Home Treatment Team geared up to help ease Maureen from the sofa.  If things go well I could then have several hours to myself on the Saturday while she spends most of the morning and afternoon in their care. 

If this Saturday comes to fruition it could become a fixed feast and gradually extended to include a mid-week stay.  All we need is a little bit of luck and the direction on the next part of our journey becomes a little clearer:

I spoke to Social Work ‘Out of Ours’ at 4.30 am so our Key Worker would be aware of our plans as she switched on her computer this morning.  I took Aimee’s advice and managed another hour in bed before Maureen was up once again, this time needing a drink.  I’m hoping she will rest a while longer so that I can have a little time to myself.

My energy tank is empty and our G P (Doctor Munjal) and others are becoming increasingly concerned about the risk of Burn-Out:  an insatiable appetite; the inability to sleep; needing to pass water frequently; aching muscle groups are far from healthy signs.  Dr Munjal insists it is time to call for help with Maureen’s care – he will play his part if she resists our plans to ease her into Day Care. When I saw him about my exhaustion yesterday the Lucky Man told me he is going to Iceland on Monday for five days: what I would give for a break of that duration!

Lady Luck is already shining down on me this morning in Costa del Cleethorpes.  A warmer day offers all sorts of possibilities.  If I can only get Sleeping Beauty to the beach who knows what might happen.  One thing is sure sun burn is out of the question with the amount of lotion we have in stock: another reminder that dementia has been around for far longer than many thought!

 

Hear their voice…

A lovely poem with so many helpful reminders for us all.

memorylanemusings's avatarmemorylanemusings

Hello, happy August 1st! I am having a couple of weeks off work, but I wanted to share this poem with you all. Have a great day x x

“When I wander
don’t tell me to come and sit down.
Wander with me.
It may be because I am hungry, thirsty, need the toilet.
Or maybe I just need to stretch my legs.

When I call for my mother
(even though I’m ninety!)
don’t tell me she has died.
Reassure me, cuddle me, ask me about her.
It may be that I am looking for the security
that my mother once gave me.

When I shout out
please don’t ask me to be quiet…or walk by.
I am trying to tell you something,
but have difficulty in telling you what.
Be patient. Try to find out.
I may be in pain.

When I become agitated or appear angry,
please don’t…

View original post 175 more words

Dementia: Picking The Right Moment

I had everything set up for the Manager at Royal Court Care Home to assess Maureen this morning but unfortunately when I returned home she was fast asleep.  He is available until 4 pm so there will be another opportunity to move things forward this afternoon.   This will be a real test of my ability to cajole Maureen into something that is in our Best Interests.  All I can do is give it my best shot and hope Lady Luck is on my side.

Dementia: A Diamond Amongst Stones

It is probable I have uncovered a diamond amongst stones when  I made my second visit to a small Care Home in Cleethorpes yesterday.  I came away with a really positive feeling about the place.  Later this morning I will return for a further chat with the Manager.

One of my neighbours inspects Care Homes as an ‘Enter and View’ volunteer. He tipped me off that Royal Court Care Home was somewhere there was a high level of resident satisfaction.   John and I believe Care Homes would be better placed in the NHS but that seems unlikely at the moment.  

From my initial observations Royal Court would be a good place to consider for a significant Respite Break.  The room that is currently available is better than anything I have seen on my travels.   The whole place seems an ideal setting for someone of Maureen’s demeanour.

It is time to do something that I always struggle with:  park things that have gone wrong for a while and move on.  There is little point in wasting my energy on past events when I am so tired.  The dwindling energy that I have needs to be focused on creating an opportunity for a significant break so that I can deal with options for the future with a clear mind.

Dementia: It’s Not A Chemical Imbalance!

Maureen’s mood is very low this morning but her depression is not a result of a chemical imbalance it is a healthy response to her environment.  How on earth could anyone expect her to be in good spirits after her experiences in the last week.  The solution is not to seek a chemical solution to her low mood it is to change her environment.  We are very fortunate that we are well aware of the work of Irving Kirsch and Peter Kinderman on the dated medical model to address low mood.

It always amazes me that Irving was at Hull when his pioneering research persuaded NICE to change their guidelines on the treatment of mild to moderate depression but the news has not made it across the Humber Bridge.  I speak from personal experience as a patient: told I had a chemical imbalance and needed antidepressants for life.  I also saw Maureen being told that if she admitted low mood the Memory Service would keep her on their caseload as they would be able to help her by prescribing antidepressants.

It isn’t rocket science to realise what is causing Maureen’s low mood this morning.  When she woke up she didn’t know where she was.  I had to abandon the Camp Site as she said this wasn’t a house as it was a junk yard: all traces have quickly been removed.  A couple of hours later she is in tears wanting to go home.  I have been robbed of a possible solution to that because her back is so painful from the incident in Ladysmith Road that travelling to see family in Nottingham is out of the question.  Then comes something that is really impacting upon her thinking: Maureen thinks she is in a Care Home this morning and her dreadful memories of last week dominate her thinking: ‘they are keeping us barely alive so they can charge us for being here.  

It is difficult to help Maureen change her mind set as dementia has robbed her of the ability to try the strategies that Paul Martin    has taught me to address low mood.  Tai chi is out of the question and the progression of her dementia may well mean that it is too late to learn to meditate.  So I am hoping that music will once again come to our rescue with Willie and Chris opening up with this message: