All posts by It's My Time Now

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About It's My Time Now

I am a retired adult educator. My wife had a stroke in February 2014 and developed mixed dementia. I was her Care Partner until she passed in October 2025. This Blog has told the story of life as a Care Partner and now focuses on the aftermath of dementia.

Dementia: Chlorine Is Preferable To Urine

 

Image result for Nasty smell pictureI actually made it to Cleethorpes Leisure Centre yesterday morning to self-administer a bit of TLC to my tired body and mind.  The aroma in the swimming pool, sauna, and spa, was a pleasant relief from what had accompanied me on my visits to Care Homes the day before: chlorine is preferable to urine.  However, it wasn’t just the smell that put me off; it was the look  of hopelessness and despair on the faces of residents.

Maureen would have hated being incarcerated in any of the places I visited on Thursday.   Her life expectancy would have been months in any one of those Homes – she would have given up: feeling she had been abandoned and deserted in undesirable surroundings.   Although they are only the tip of the iceberg I have decided to call a halt on looking at other Care Homes in the area.  There seems little point in spending further time looking around when Lindsey Hall Nursing Home ticks all the boxes:  my task is to remain patient and find ways of coping until Day Care becomes a viable option.  This means taking every opportunity to have a break from my duties as a Care Partner by finding regenerative activities during daily Carer Sits.  I will post what I have been up to on this front on a daily basis:  it’s one of those occasions when actions will speak louder than words!

 

 

Dementia: Happy Birthday Son

Steven my only son is 36 today.

He lives in Chester and I haven’t seen him for a couple of years: yet another casualty when dementia is the elephant in the room.

A day trip on the train beckons.

Why is organising even a day’s Respite so difficult for any Care Partner?

 

Dementia: A Sentence Of Hope

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As I looked at my Inbox at the end of a very harrowing day there is was a sentence of hope:

Hello,

Would you be able to come to Lindsey Hall on Friday 30th for around 11 to complete the assessment?

Claire

This message from the Dementia Manager at Lindsey Hall Nursing Home helped me to put my day into perspective and remove the bad smell still in my nostrils.  I had become despondent following brief tours of three options for immediate Respite.  They all had that distinct smell, and look, of prescribed disengagement.  I had returned home at the end of my stint reminding myself never to put Maureen into such places.

I have had a reasonable amount of rest in the last 12 hours.  There is a small spring in my step this morning because of light at the end of a very dark tunnel.  In the next few weeks I have to become ‘Patient Paul’ and work with Claire to ensure that Maureen enjoys a smooth transition to becoming  a resident at Lindsey Hall Nursing Home.  How fortunate we are that such a resource is on our doorstep!

 

Dementia: Seeking Immediate Respite

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I now realise that the only way I’m going to ger some quality sleep is to be in a separate place to Maureen for a while.  It is now approaching 5.30 am and she has been up for an hour following on from  incidents earlier this morning.  Sleep interruption is becoming the norm  and I have almost forgotten what it is like to enjoy quality rest.

When I speak to our social worker later on I will be requesting immediate respite.  I  need some rest if I am to have the energy to be Maureen’s  Care Partner: sleep deprivation is torture for anyone.

Dementia: Sleep Interrupted Again!

Image result for Sleep interrupted again pictureJust after midnight Maureen appeared at my bedside and woke me up.  She had come looking for me after choosing to sleep alone in the marital bed.  It was clear that she was very frightened and confused by the events of the day: struggling to make sense of where her brother had gone and why we hadn’t all gone to sleep at her Aunty’s.  I joined her in the marital bed for a while but couldn’t sleep.  I lay awake thinking how plans that had emerged from my meeting with our Social Worker would not come to fruition.

Gary and I had hoped that Lindsey Hall Nursing Home would be able to take Maureen for a weeks Respite on Monday 3rd of October.  I quite understand their reluctance to come to my rescue and give this exhausted Care Partner a much-needed break.  Claire, the Dementia Manager, is taking a very responsible approach to Maureen’s introduction to Lindsey Hall.  As she says we want to help but need have to tread very tentatively and attempt to build up Maureen’s trust.

Claire has only met Maureen once but she has made a very important point about Maureen’s capacity fluctuating.  Some say that she is at the most difficult stage of dementia; with periods of lucidity within her presentation: don’t I know it!  However, her inability to apply logic and rational thought provides a very challenging context to any form of negotiations.

I have to be patient and fully understand the need for a cautious approach to Maureen’s introduction to Lindsey Hall.  Claire suggests a period of Day Care in a month or so when the Home begin to get up to speed.  This seems, to me, a very sensible approach with an opportunity that is too good to miss for a positive solution to much-needed respite.

As soon as Social Services open for business this morning I will be on the phone arranging a meeting with Gary to consider how we can organise alternative Respite for a week on Monday.  It’s now just after 2 am and Maureen is shouting for her mum and looking for missing footwear.  This cannot continue……..including Blogging at this time of the morning!

Dementia: Just Another Day

Yesterday I reaped the benefit  of a Team of people who provide support to us:

Kelly from Dementia Engagement:   For clarifying progress of the Gardening Initiative.

Sue from the Home Treatment Team:  For helpful advice and support.

Claire from Lindsey Hall Nursing Home: For confirming assessment visit today

Staff at Local Lloyd’s Pharmacy: For providing advice and TLC.

Gary our Social Worker: For advice and arranging to meet this afternoon.

Dianne (sister-in-law): For confirming visit today and willingness to stay with Maureen while I meet Gary.

 Cleethorpes Leisure Centre:  For good company in refreshing surroundings.

Neighbours: For keeping Maureen safe while she was on walkabout when I was out..

Specsavers Cleethorpes: For providing advice over Maureen’s optical issues.

Lisa (daughter): For telephone support.

Blog Followers: For helpful suggestions and support.

Charlotte:  For a supportive Carer Sit

Various Care Agencies: For clear information and advice

I realise that we are very fortunate with the level of support we receive here in Cleethorpes.  There is little doubt I wouldn’t cope without the Team of people who are always at the end of a telephone..

Maureen’s opening gambit today is: ‘she doesn’t want to go; has nothing to wear and doesn’t know what she is going to do to’ – just Another Day in my life as her Care Partner.

 

 

Dementia: On Target? (Week 2)

Image result for on target ? picturesAs our move has now been delayed I am now reviewing how I did on the targets I set for last week:

  • To smile more and communicate clearly

I haven’t had a bad week on this front with the occasional lapse: particularly when Maureen tried to hang washing on a tree and ended up treading on a freshly set part of my vegetable plot.  I didn’t smile at this escapade and became frustrated that my hard work had been undone.

  • To visit family in Coventry
  • To have a day out together

No progress has been made on the above.

  • To go out and leave Maureen to her own devices for an hour on two separate occasions

I have left Maureen on a couple of occasions almost approaching the hour mark

  • To revise and dance our routines to the Cha Cha in our Lounge

We have had the odd smooch but no Cha Cha in the last week

  • To encourage Maureen to do crosswords or jigsaws

Thursday’s carer did a couple of crosswords with Maureen and I have bought a jigsaw

  • To attempt to resolve Maureen’s shortage of clothing

I have bought Maureen 3 pairs of joggers which are awaiting examination.  The pyjama trousers I bought are uncomfortable.

The question is am I doing a good job?  I think I have done well in the last week by exploring Day Care at Royal Court and a move into Lindsey Hall Nursing Home.

I hope to make progress on some of the issues that are outstanding in the coming week.

Three additional targets for this week:

  • To explore avenues for some form of immediate respite
  • To explore  moving into single rooms in Lindsey Hall on a temporary basis
  • To explore viable alternatives to moving into Lindsey Hall

Dementia: We’re Not Moving Yet

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It is going to be early October before we are able to move into our new abode.  I called in at Lindsey Hall Nursing Home today and accepted that it would not be practical for us to move in on Friday.

I’m pleased that we will now have a little more time to put our affairs on order before we embark on the next stage of our journey.  I feel somewhat relieved that we will have a little more time to ensure a smooth transition to living in a Nursing Home.

Maureen is extremely tired at the moment and her spirits are low.  Once again I need to provide lots of TLC and support her to find purpose in her life.

 

Dementia: Four Days To Go

Image result for four days to go imagesI now have a strategy in mind if Maureen is reluctant to move to Lindsey Hall Nursing Home on Friday. If she is objects to moving there will need to be a Capacity Assessment of her care needs and residence.  I would be confident that it will come to the same conclusion as before: that she lacks capacity and has to accompany me.

A number of local people have agreed to assist us with the move.  I’m also hoping that some family members will travel to Cleethorpes to visit us in our new abode as soon as they are able.

This morning I hope to be able to spend some time in our room to consider what could be done to make it familiar to Maureen.  However, I have to be careful not to make a nuisance of myself with the Home opening its doors to residents for the first time today.

 

 

 

The long and winding path(way)…

You can always depend upon George for saying it as it is.

georgerook51's avatargeorge rook

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It’s not all bad!

In fact, this week has been inspiring.

At our Shropshire Telford and Wrekin Dementia Action Alliance meeting members told us what they’d been up to. The list is impressive.

Telford schools have been emailed with an offer of dementia friends awareness sessions for PHSE.

Dementia roadshow held at PRH hospital.

Telford taxi licensing dept has been approached about including dementia friends sessions in driver training.

Over 500 people have attended church services which included dementia friends awareness, and 124 people have completed the church based 4 session dementia training course.

The Lichfield Diocese dementia worker is promoting use/creation of boxes.

T&W Senior Citizens Forum is delivering musical memories sessions.

Almost all fire and rescue staff have now done DF awareness, full time and retained.

Fire and Rescue provide home fire safety visits with support from the Memory Service re PWDs.

Shrewsbury Job Centre…

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