Things are too difficult here at the moment to Blog. Have asked for medical assistance ASAP: awaiting for return phone call.
Tag Archives: Confusion
Dementia: Honesty, Fear and Confusion

This post will be brief after an exhausting night. We went to bed early last night as we were both very tired. Before we turned in Maureen shared her fears that I would leave her because I would get fed with her always being tired and ill. During the night she has been up three times frightened by things around her.
She shot out of bed around 11 pm frightened that she was late getting up. When she went downstairs she saw a dog in the lounge and a man at our front door. After further sleep she was out of bed again frightened that there was a cat in our bedroom. A few hours later she was complaining that she was cold and had no clothes to wear.
We were drinking tea in bed an hour ago and she was talking about how she had lost her memory. She shared, for the first time, that sometimes she didn’t know who I was and wondered if other people knew she had lost her memory. I listened repeating my mantra: that her recovery from stroke is continuing and how her incredible efforts are making such a difference.
I am hoping that Maureen will be able to rest a little longer. With luck she will remember two things I have suggested we try to do today: set some flower seed and walk to nearby ‘Leading Labels’ where she might be able to choose some new clothes.
I am forwarding this post to our G P and my Admiral Nurse in preparation for our meeting on Friday..
Dementia: Looking Back: Looking Ahead (Week 12)

I am only going to look back four hours to outline how Maureen is at the moment and the challenges that face me as her Care Partner. She went downstairs at 2 am to make a drink and came back ten minutes later saying she was frightened because ‘the others weren’t there’. She asked if I would make her a cup of tea as she ‘didn’t like being downstairs by herself’.
When we were sitting in bed drinking tea she asked me ‘if I knew how to help her get her memory back’. She continued on with this theme for some time eventually deciding that improvements are taking place all the time. After listening to her for some time, and making supportive comments I suggested we should try to get back to sleep. I’m pretty sure Maureen drifted off shortly after my hand left the light switch.
My guess would be that Maureen will have forgotten her thoughts when she wakes a little later. In fact she has just joined me as I type saying she ‘is looking for her mum’. I’m not sure she knows who I am as I encourage her to rest a while longer before I bring her a cup of tea..
I’m hoping the forthcoming involvement of the Home Treatment Team will make the next stage of our journey a little easier. Friday’s scheduled meeting with my Admiral Nurse and G P will be an opportunity to make sure that Maureen’s referral is moving in the right direction.
Dementia: ‘Things Are Looking Up’
Yesterday was a good day despite Maureen being tired after her evening with Clarice: she said her aunty never stopped talking while I was out watching the Sky Blues on T V. I wouldn’t be at all surprised as her uncle Dennis and I often used to say ‘listen to them they are like a couple of teenagers when they get together’. Despite needing plenty of rest she responded well to the new regime.
Early on I thought my new plans were doomed to failure when I asked her to stir the porridge. She did it begrudgingly: grumbling about it being my job. Then she announced that she had never liked porridge and said she didn’t want any. One of the things I have learned is that ‘no’ often means ‘not now’, and a few minutes later she was at the table with spoon in hand.
Maureen was eager to help with the preparation of a very late lunch. She worked well peeling and chopping vegetables with minimal help. We were both delighted with the meal and my raspberry surprise for sweet hit the spot. I knew I’d be onto a winner with using her favourite fruit.
As dusk set in I suggested a late shopping expedition into Cleethorpes. Once again I turned a ‘no’ into a yes persuading her that we would be able to park right outside the Frozen Food shop. Once inside I knew I had backed a winner as we came across an old face that Maureen is particularly fond of. Lisa was lovely with Maureen and kept her arm around her as they chatted on the banks of the freezers. I am pretty sure Lisa’s speech difficulties bring back happy memories of one of Maureen’s aunties who was deaf and dumb.
I am not intending to get carried away with the positive signs from yesterday: one swallow does not make a summer. It’s a case once again of Maureen’s advice of ‘slowly, slowly catchee monkey’ and if I keep my nerve our journey might become a little brighter than it has been for a while.
As night followed day I got a stark reminder that Mrs Dementia is never far away. Maureen appeared at the top of the stairs at 11.15pm as I sat at the keyboard. She had woken from napping on the sofa and was worried that she is late for school or some other appointment. I did my best to reassure her that it is Saturday night and she hasn’t missed anything. Mrs Dementia is struggling to make sense of her world and stared at me in disbelief – I don’t think she knew who I was.
My efforts to persuade Mrs Dementia that it is time for bed fail. She is very unpleasant and dismissive of any of my suggestion to help. She decided to spend the night on the sofa: I eventually left her to it and bedded down in the spare room. As I finish this post I have no idea if I’ll be dealing with Maureen, or Mrs Dementia, when the woman in our lounge eventually rises from the sofa.
Dementia: Playing It Safe With The Sky Blues

I’m an armchair supporter of the Sky Blues these days. To be perfectly honest I wouldn’t pay to watch professional footballers as they are overpaid Prima Donnas. Coventry City are on featured Sky One tonight playing Peterborough and it is a rare chance to see my team in action. Unfortunately, we don’t have that channel on our T V so I need to find a local venue where I can watch the match
Maureen remains tired and confused today. It wouldn’t be safe to leave her to her own devices for a couple of hours this evening. Fortunately, Clarice has agreed to come round and sit with her while I go out. I will make it a fait accompli; collect Clarice and bring her round. If I gave Maureen the choice she would say that she is quite safe to be left on her own: those days have gone!
Dementia: Thank Goodness For Gary Lineker

This post was written last night and will be circulated on Sunday Morning:
I’m glad I’ve got Match of the Day to watch in half an hour. Maureen has just denied me of my hat-trick as she wants the bed to herself as she is too hot to have me in beside her. Then just as she is getting ready for bed she tells me that there are men sitting in her car staring up at her. Just to put her mind at rest I went outside to assure her that there was no-one in the car. Unfortunately, she is still very unsettled as she believes that this has happened before and other people are using her car. She says she needs the car for Paul to drive her around as her dad can’t drive.
I had intended to go to bed early tonight but I need time to settle myself after seeing Maureen so frightened: Lineker is the man for that. Maureen hasn’t had a bad day but on occasions she has been sitting with a very worried look on her face. I have delicately tried to get her to share her thoughts and she has said she has forgotten what she is thinking about.
I’m hoping that the referral to the Memory Service will lead to involvement with the Home Treatment Team: when they were involved before I was impressed by their approach to dementia. Their involvement might give Maureen an opportunity to open up to professional staff about how she is feeling. That would be a preferable option to plying her with medication that would close down the areas of her brain that are already under attack from dementia.
Sunday 7 am continuation of this post:
I’m glad Match of the Day is repeated in half an hour’s time. I nodded off early in the programme last night and I need Gary this morning. The advice of ‘letting sleeping dogs lie’ has really hit home this morning. For the last hour or so Maureen has been trying to make sense of her memory loss. It started with thinking of writing to her mum and it has ended with what have I been doing for the last 16 years. The questions are coming thick and fast with all sorts of barbs thrown in and I have had to be at my best to keep my cool.
Maureen understands my addiction to football and may accept that I’m going downstairs to watch Premier League which is a relief after listening to the Sky Blues struggle yet again yesterday. Gary will also give me a break from the repeated enquiries that lead nowhere as Maureen just can’t remember and is bemused.
I’m hoping that additional support from the Home Treatment Team will help us through the next stage of our journey. We have now hit a very rough passage as we try to figure out a way forward.
Dementia: New Problems With Using The Kettle
I have had to keep my eye on Maureen’s use of the electric kettle for some time. She often fills it and up leaves the lid open when she switches it on. This morning I smelled burning plastic when she put the kettle on a hot ring of the electric cooker. I managed to rescue the kettle just in time with only superficial damage to the plastic casing . Maureen didn’t see anything wrong in what she had done, clearly remembering how she used to boil water in times gone by.
The need for vigilance is paramount if a serious incident is to be avoided in the future. Leaving Maureen alone in the house is now very risky and has to be called into question. Unfortunately, our Care Agency are struggling to put additional sits in place as they are short of staff. This means that I’m going to be confined to quarters for four days a week for the forseeable future. In the mean time I will need to keep my wits about me at all times to minimise the chances of a serious accident. I think it is time to call in Occupational Therapy to see if we can make the house safer for someone who is forgetting the safest way to use various things in the house. The Fire Brigade are already wanting to pay us a visit to minimise the risks of accidents in the home.
Dementia: The Bed’s Too Big Without You

I think it safe to say I’ve put up a pretty good performance in bed the last couple of nights. Just past my 70th birthday I’ve been rather pleased with how things have gone. I seem to have worked out how to get things off to a good start: the first moves are important as we all know and I seem to have grasped the sort of thing that needs to follow.
Having spent several days establishing a place where men are not allowed, I now seemed to have found a route into Maureen’s bedroom. Last night followed the ritual of the previous night: no questions asked I just carried on as we have done for years. Once in bed I kept my distance and went with our normal ritual of ‘night, night sleep tight’. If my memory serves me right I think I managed to get a perfunctory peck on the lips -have to take things steady at my age. We were both extremely tired and dropped off as soon as our heads touched the pillow. In the early hours of the morning I knew I was in the right place.
Maureen was out of bed looking out of the window, she said something along the lines of she didn’t know where she was and needed to know she was in her bedroom with Paul. Then it was: ‘tell me that’s where I am and I will be ok’. How fortunate that I was lying in bed and able to make the right noises to help minimise her confusion. You can guess where I’ll be aiming to sleep from now on but like all of these occasions it will be a question of ‘don’t call me, I’ll call you’. Now where have I heard that before?
Postscript: As I post this Maureen has gone off on walkabouts without telling me. She nipped out when I thought she was in the back garden. It’s time to put my ‘money where my mouth is’ and leave her to roam alone for a while. If I go and find her straight away it will only confirm she is not safe to be out on her own and always needs a chaperone. My plan is to bump into if her is she is not back within the hour.
Great news she’s just come back after walking around the block. Who cares she’s in her slippers because there’s a smile on he face as she says she’s ‘not walking enough’. I knew locking her in wasn’t the way forward!
Dementia: News From The Night Shift

When I was a machinist in the car industry I avoided night-shift like the plague. Fortunately, my mate on the opposite shift loved working night’s so I only ever did a total of a couple of months in my 8 year stint machining crankshafts. Now I’m on duty 24/7 with an endless hours’ contract: when duty calls I have to deliver.
At around 1.30 this morning I heard Maureen on the move. I joined her downstairs to find her looking out of the window. She was concerned that the car was about to be stolen: even my reassurance that it was quite safe made little difference. She was convinced there were children and a dog in her vehicle.
Almost an hour later I’m hoping that she is bedded down on the sofa and this will allow me to be on standby for a few hours. It’s unlikely I will risk going back to bed because if she could wake and panic because she is unsure where she is.. What I intend to do is tidy up for a while and then doze in an armchair close to the sofa. I didn’t need to do that after all as Maureen decided that it was too cold to stay downstairs and went back to bed. She’s been sleeping like a log for a couple of hours now. A couple of hours later I went back to bed and have just woken after some more welcome rest
I hope to be able to talk things over with our G P today. It is difficult to consider sleep after some of Maureen’s latest antics. However, I need to develop a strategy to let events wash over me, as I do when she launches into a verbal attack. I need to take a leaf out of Maureen’s book and fall asleep almost as soon as my head hits the pillow. If I don’t begin to do this soon I’m going to be in real trouble and that is something neither of us can afford.
Dementia: ‘Haven’t I Got A Sister ?’

It’s 10 pm and I’m blogging to help me cope with the events of the last half an hour. As Maureen completed her preparations to go to bed I heard her sobbing in the bathroom. I went to console her and she said she ‘didn’t like sleeping by herself and haven’t I got a sister’. It took me a while to settle her before she told me she wanted the bedroom to herself. As I was about to close her bedroom door she said ‘who are you?’
I have no problem accepting that Maureen doesn’t know who I am at various times in the day. My role is to minimise her distress and help her to feel safe. However, I’m glad I’ll be able to watch a bit of footie on T V for a while as sleep doesn’t come easy when you see someone you love so upset. It wouldn’t be so bad if I could do what comes naturally in such situations but any form of physical contact is risky when dementia is rampant with Maureen’s history.