Dementia: CCTV Might Have Saved Him

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When I called in to see my brother at his Nursing Home at 10.30 am  yesterday  I was told he was tired and had gone back to bed.   So I moved on to visit my mum in her Residential Home.  As always she asked me if I’d come to take her out but when I returned from fetching her coat she was fast asleep in the chair.  I stayed with her for a while before heading off to see my brother’s wife.  This is when I was reminded how respite had led to disaster for John and Jean.

Almost 5 years ago when Jean was on her knees she booked John in for a week’s respite. Towards the end of his stay he had become aggressive with a staff member; police were called  John was taken away and eventually Sectioned under the Mental Health Act.

John was detained in the local Mental Health Unit for 6 months before any Nursing Home were prepared to take him.  A couple of months ago he was evicted from Norton Grange Nursing Home because his wife complained they were not dealing with his oral thrush.

I was shocked when I saw John yesterday afternoon. He is a shadow of the handsome fun loving man I have always been proud to call my big brother.

Respite for John was a disaster.  He has never been a violent but man we will only ever have the Respite Centre’s version of events: that is why Jayne Connery is right: CCTV in Dementia Care Homes must become mandatory.

I have decided to stay in Coventry another night and hope to take my mum out today.

Dementia: Going Home

I woke at one this morning after going to bed before nine.

On Remembrance Sunday I thought of my dear dad, sadly no longer with us.

Finbar’s words express far better than I could what a wonderful father he was:

As a Tail Gunner with a Lancaster crew, he flew over 40 missions.  When I thought about what ‘ops’ I would be on today my mission became clear: to travel to Coventry to hold my mum and my brother’s hand.  Mum has vascular dementia, John has Alzheimer’s.  It is possible that neither of them will recognise me.  However, I know I’ll remember them and it’s what dad would have wanted.

I’ll be setting off shortly and may post more when I arrive at my hotel in Coventry.

Dementia: Houdini Foiled So Far

Image result for houdini picturesThe last time Maureen was in Ashgrove Care Home she did a runner.   When the fire alarm went off she hopped it and was reported to police looking at flowers in a local resident’s garden.  I received a phone call within minutes of this happening.  I was  soon informed when she was safely back behind lock and key.  This is rather different to how Ladysmith Road deal with significant incidents.

Although you don’t expect to hear the  that your wife has escaped from a secure unit it didn’t worry me too much.  A few weeks earlier she had walked out of Royal Court Care Home: she picked the lock on a patio gate.

Maureen has hopped it several times from under my watchful eye.  However, she doesn’t wander; she either goes looking for me when she has forgotten where I am or takes off if I have upset her.

From what I have seen Ashgrove are as good as it gets for a Care Home.  In Special Measures a short while ago they now provide sound person-centred care.  There is no doubt that the newly built extension would get a higher star rating once it is opened but it is exclusively for residents with dementia.  At this point in time, Maureen is better off in a Care Home environment.

Yesterday I managed to have a helpful chat with Karen from the Home Treatment Team.  We talked far and wide about how things had been here and the possible ways forward.  Karen encouraged me to focus on the best interest of Maureen and me as a couple.

It is reassuring to know Maureen in safe hands with people I trust.  This gives me an opportunity to explore the best way forward for the next stage of our journey: more of the same is no longer an option!

Dementia: Mandatory CCTV In Care Homes: ‘Its A No-Brainer!’

My cyber friend Jayne Connery is absolutely right CCTV should be mandatory in Care Homes.  This is not jumping on the bandwagon it is based on the experiences of Maureen and my brother.

Maureen was 78 on July  the 26th of this year.  I was shocked when I saw her condition as  I arrived at Ladysmith Road Care Home to wish her happy birthday: she had a black eye, a cut on her nose, and was complaining that her back hurt her. She told me that she had been pushed by staff on a trolley that collided with a door.   Care workers said that she had fallen out of bed. My concerns were raised even further when I attended a Review Meeting later in the morning when I was asked if Maureen often barricaded herself in a room and went to sleep on the floor.

I removed Maureen from Ladysmith Road very shortly after the Review Meeting as the medical opinion was that she was likely to deteriorate rapidly in this setting.  Once we were home Maureen continued to complain about back pain and the bruising on her face was becoming more prominent.  I became concerned that internal bleeding was taking place and took her to Grimsby Hospital.  Following examination and X-rays, she was discharged.  The examining doctor expressed surprise that she had not been brought to the hospital earlier.

When I raised my concerns with the Manager of the Care Home she stuck to their story: ‘she had fallen out of bed’.  She also advised me ‘Maureen had  only have been asleep on the floor of the small lounge for a short period of time’.  We will never know what really happened without CCTV.

One final point the Manager of Ladysmith Road told me that they had been encouraged to reduce admissions to A and E .  However, if a resident is on blood thinners has fallen and bruising is continuing that is another ‘no-brainer’

 

Dementia: Respite At Last!

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We all gave it our best shot yesterday morning trying to persuade Maureen to go into Ashgrove Care Home.  Gary our social worker, Gail our carer along with myself talked the talk but her arguments for staying at home from the day before were repeated.  Just as we were about to call for support from the Home Treatment Team Gary suggested that I could just ‘rock up and drop her off’ telling a ‘Love Lie’ that we were just popping into Ashgrove for a cup of coffee.

Gail and I took Maureen for a walk around Cleethorpes Country Park and popped into Ashgrove on the way back.  Once we were inside staff were primed to settle Maureen so Gail and I could beat a hasty retreat.

Maureen will stay in Ashgrove initially for a week .  I will not visit during that time as I know they will contact me if needed.

My priority during this break is to attempt to sort out my sleep pattern.  I have decided to do this by sleeping in my own bed rather than visit Madyhamaka Buddhist Meditation Centre.

Last night it was  strange being in the house without Maureen.  Music added a feeling of familiarity to my surroundings.   When  I played the first side of The Sound of Music I could have sworn I heard my ‘Singer Lady’ holding forth.  Once I sat down to eat I counted my blessings for the excellent support I had received from professional staff and family members throughout a challenging day.  As I stared at the empty place next to me I  knew that the means justified the ends: Maureen would be well cared for and I would get the rest I needed.

Just for a change, I have updated my Good Music page on time today.  With  Remembrance Sunday around the corner there one contender. I will always be grateful to Izzy, one of my many friends from my days on Talking Point, for making me aware of this song.

 

Dementia: Refusing To Go Into A Care Home

Image result for I WANT TO STAY IN MY HOME DEMENTIA PICTUREMaureen asserted throughout yesterday her right to remain at home.  Despite various attempts to ease her into Ashgrove Care Home, she was adamant that she wanted to stay in her own home.  As she said: ‘I’ve done nothing wrong, I’m not a criminal: you can’t make me go anywhere’.  She also said that if I was struggling to sleep, I was the one who needed help and should move out to allow her own family to look after her.

There is no doubt that Maureen remains a very intelligent woman, able to use logic and rational thought.  Her arguments for staying in her own home were perfectly  understandable considering her experience of Care Homes.  I had to remove her from Ladysmith Road bruised and broken on her birthday.  She escaped from Royal Court and Ashgrove as she hates being locked in anywhere.  Her faltering short-term memory means that she can’t remember the details of her incarceration but the scars are there in her emotional memory.

Maureen was afraid to go into a deep sleep last night for fear of being taken away.  She is now worried if I’m out of sight.  Therefore, we have to be very careful this morning to ensure that our next moves don’t push her over the edge.  Despite being exhausted I intend to help Maureen hold the line on staying in her own home.  There is no simple solution to the current impasse but I will not collude with any plans to deprive my wife of her liberty.

Although I’m exhausted and would love to be enjoying planned respite, I intend to help Maureen hold the line on staying in her own home.  There is no simple solution to the current impasse but I will not collude with any plans to deprive my wife of her liberty.

Gary our social worker will be here this morning.  It is his turn to try to move things forward.   Sue from the Home Treatment Team could get no change out of Maureen yesterday, despite her success a few weeks ago.  After more than half an hour she recommended backing off to avoid further distress. As Sue left, she commented how much Maureen had deteriorated  since her last visit: don’t I know it!

Dementia: ‘It’s A No Brainer’

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Quality sleep has become impossible in the last few days, as you will see from this page, and I’m worn out.  Following advice from Marie of the Home Treatment Team, I have made arrangements for Maureen to go into Ashgrove Care Home this morning.  My initial thoughts were to seek a short break but after another night of Maureen being in and out of bed, I hope to extend it beyond a couple of days.

The dangers of poor sleep are well documented and Carer Burnout is around the corner.  It may well be that medication or some significant changes in our routine are necessary to help solve this one!

Once Maureen is safely in Ashgrove I’ll be on my way to Madyhamaka Kadampa Meditation Centre (pictured above).  The peace and tranquility of such a setting are just what I need at this moment in time: ‘it’s a ‘no-brainer’ as Kelsang Dorde ( far right below) would say.

Cheers Dorde, it’s your round when I get up there this afternoon!

Dementia: Well Deserved Recognition For Kate Swaffer

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Great news today that my cyber friend Kate Swaffer has got deserved recognition for her exceptional work:

Australian of the Year

STATE FINALIST

State: South Australia

State Finalist Australian of the Year 2017

Kate Swaffer

Dementia advocate

A humanitarian, advocate and activist for people with dementia, Kate Swaffer was diagnosed with the disease in 2008, just before her 50th birthday. Refusing to be defeated by the diagnosis, Kate has helped redefine the way the world views dementia and has driven improvements to services and outcomes for the 354,000 Australians currently diagnosed. Since then, Kate has completed three degrees and is currently undertaking her PhD. As Chair, CEO and Co-founder of Dementia Alliance International, Kate is a voice for the 47.5 million people worldwide living with dementia. She sits on numerous committees and councils, and was the first person with dementia to be a keynote speaker at a World Health Organisation conference. An accomplished author, Kate has written a number of books and articles, including What the hell happened to my brain: Living beyond dementia. By transforming tragedy into triumph, Kate is changing society for the better and showing others how to lead remarkable lives despite the obstacles.

Dementia: Rescued By South Pacific

I had to resort to old technology to rescue Maureen from her kidnappers this morning.  YouTube was down due to technical difficulties so I hastily put on a compact disc of South Pacific.  Once we got to the ‘Dites Moi’ Maureen started to sing in French and I knew I was settling her into the present.

As Maureen lay down to have a rest she mentioned that ‘her memory had been playing up again’.  She looks terrified in these moments of self-awareness; struggling to understand that her memory issues are not resolved.  It is something that she needs to explore a little further and I’m hoping that Marie from the Home Treatment Team will be here this afternoon for the walk that was promised on Friday.

I think it is likely that Maureen will forget the detail of anything that Marie tells her about her faltering memory.  She may also decline invitations to attend activities that might help.  However, I’m sure she will recall walking in the fresh air with good company: two things she always enjoys!

 

Dementia: Kidnapped

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Maureen woke at 3 am  convinced that I have kidnapped her and brought her to this cottage against her will.  She has been in tears struggling to understand my thoughtless behaviour.  It’s all hands on deck at the moment as I try to reassure her she is safe and will be able to go ‘home’ soon.