Category Archives: Uncategorized

Dementia: A Great Break

I will be heading home after breakfast today..  Madhyamaka has been a great place for respite: lovely people and great meditation sessions.

The news from home has been good with Maureen being very settled. It will be inuteresting to see how I’m received on my return.

Seeing the progress Dorde has made since my last visit has been heartening and inspiring.  He suffered serious brain damage from falling out of a tree but continues to make progress with his speech impediment and his mobility. His teaching on meditation are as effective as any I have experienced.

Dementia:Neuroplasticity In Action

Well I made it to them Buddhist Centre and have had a great nights sleep. I’m blogging from my phone for the first time -so more typos the ever I expect.

At 8.30 I’m  going to see neuroplasticity in action.  My friend Dorde  is teaching the meditation class. He has brain damage from a serious accident. I have just been chatting to Declan his Support Worker about the progress Dorde is making: simply remarkable.

I couldn’t  be in a better place peace, tranquility and neuroplasticity: I count my blessings.

 

 

 

 

 

Dementia: Respecting Maureen’s Reality

The phone lines were hot yesterday as I kept in touch with professional staff providing ongoing support.   I eventually decided not to seek additional ‘Boots On The Ground’ as Maureen’s focus was changing as the day progressed.  It was helpful that ‘Flexible Sue’ our social worker was back in work and she is making a scheduled home visit tomorrow.

Maureen is now articulating what I had suspected for some time: she is frightened when I am out of sight and doesn’t know where she is anymore.  I realise that this could be a dip in her presentation or a plateau; I’m hoping it is the former.  As my prime focus remains ‘minimising distress’ I have adopted the following ‘Working Position’, which I Emailed to family members and professional staff:

‘We will remain in Cleethorpes from now on.

There will be no more trips to Coventry or elsewhere.

Telephone calls need to be short and sweet: her reluctance to take calls is likely to continue.

Visits need to be in very small numbers for short periods of time.

My Blog details how things are going on a daily basis’.

I’m very grateful to Bill Malley one of my Line Managers when I worked at Coventry City Council for introducing me to the concept of ‘Working Positions’.  They are statements of intent sharing practical solutions to dynamic situations: ideal for dealing with dementia

Dementia : Thank Goodness For Geoff Lynne

Geoff Lynne’s ELO just lifted me after a difficult start to the evening.  Seeing them at Glastonbury helped me to remember some good times in my life at a time when I needed an escape from the difficulties here.

As I was finalising our Sunday evening meal Maureen decided to take exercise in the garden.  She failed to heed my warning that her shoes were in a dangerous state with the sole falling off.  I found her some safer shoes but she refused to change into them.  As I stepped back outside from checking how things were simmering I noticed that the back gate was open.

I hurried into the front drive and watched her from a distance as she ambled down the road.  She then disappeared into the garden of some neighbours who we hardly know.  As I peered through their gate I could see her moving things about in their garden.

I called on Kevin our next door neighbour to help entice her out of the garden.  He stuck to the plan and told her I was looking for her.  When she saw me she wanted to know why I was looking for her ‘as she wasn’t looking for me’.

Maureen played with one of her favourite meals spitting most of it out claiming it was undercooked or cold.  She encouraged me to keep it so she could show her son the kind of rubbish that is being served up here.  Unfortunately, his phone call from Durham came when she was fast asleep.

I had a chat with Jessica from the Home Treatment Team who said she is having a bad day.  As always she offered support in terms of sending someone out if things escalated.  ‘Lynnie’, as Rob my brother in law calls him, was all I needed.  Rob remembers backing him when he was part of the Idle Race as he has backed many more.

Sleeping Beauty is in the land of the nod again now: once again it was a shame she wasn’t able to have contact with a family member at a time when those opportunities are diminishing.

 

Telegraphing their lack of understanding

George never gives up trying improve how those with dementia are treated

georgerook51's avatargeorge rook

So GPs have finally said there’s no point in a person knowing what’s wrong with them.

Oh, yeah, I know you’ve got cancer but it’s a type we can’t cure, you’ll die in three months, so I won’t tell you. Then you won’t worry, your family will live in happy ignorance, and it’ll be a much better way to end your life.

Absolutely reasonable. Just flicking a switch.

image

Click.

There. Goodbye. It’s over.

I know I’ll miss out on £50 for referring you for a full diagnosis. But it’ll save you loads of pointless visits to doctors, scans, chemo, counsellors, Macmillan nurses, our practice.

And we’ve got too much work now anyway.

No. Just go home as if nothing has happened.

Ignore your pain and discomfort.

Ignore your family, children, friends…just go on as usual.

And one day, well, you just won’t wake up.
….

Does this happen?

Of course…

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Dementia: Looking For Dodgy Dave

I have just found Maureen on an early morning walk a few streets away.  I have a sneaky feeling she was trying to set up a photo opportunity with Dodgy Dave.  The Prime Minister is due in Cleethorpes shortly as part of the Armed Services week-end.

As Maureen’s long term memory is intact she remembers being close to Prince Charles when her came here and I think she wanted another scalp in the scrap book.

I don’t think she realises her time is running out with Dodgy Dave now Brexit has won the day.

 

Dementia: What A Clanger!

I was rather tired yesterday after being woken at 2 am and not being able to get back to sleep.  This led me to try to catch up on sleep with an afternoon siesta.  Unfortunately I was woken an hour later by Maureen shouting: ‘this place is like a scrap yard’.  She was right – in every room and the garden I had left evidence of my half-finished endeavours.  I soon got my deserved reward with clothing and insults hurled in my direction.  The irony of all this is that I had been chatting to Chloe in the morning and she had reminded me how important it was not to add to Maureen’s levels of confusion: I would have got a University First in return for my efforts yesterday.

I have great respect for Chloe’s understanding of Maureen’s dementia.  She has had years of experience of working with clients who have the condition and  personalises her approach to Maureen’s care.   I have learned a lot about how to be an effective Care Partner by Sitting next to Chloe’: yesterday I failed to heed her message and created confusion.

I hope I have got the message now and will consider whether my behaviour is likely to add to Maureen’s confusion.  Lying in bed with clothing hurled in your direction certainly gives you food for thought.   I’m not sure I dare mention this to Chloe or she might think there is little hope for her apprentice!

Dementia:Being Positive and Using Distraction

 Maureen’s presentation is continuing to fluctuate and it is often difficult to know how to respond to the daily challenges.  Maureen was escorted back home twice by neighbours yesterday.  We laughed about their interventions and I offered to make Maureen a badge to indicate that she was a Big Girl now and safe to be out by herself.  I have also been advised to be positive and use distraction to relieve Maureen’s concerns about her poor memory.

I became very concerned yesterday about Maureen’s distress about not being able to remember where she was and who I am.  As Maureen became increasingly distressed  I sought advice from Isobel’s in the Home Treatment Team.  Her advice was helpful but it remains taxing when Maureen doesn’t know who I am and is ill at ease with my presence.

One matter I need to resolve as soon as possible is to create opportunities for the three people who are working with Maureen (Chloe Gail, and me) to get together on regular basis.  We need to discuss how things are going and keep our interventions with Maureen under review.   That is an issue that will not be helped by being positive and using distraction techniques.

One strategy that is working is highlighted today on my Good Music page: hope it continues to work in the coming week.

Dementia: Rapid Response

Maureen is feeling out of sorts this morning: concerned about the impact of her fall and feeling dizzy.  Within ten minutes of contacting Clee Medical Centre appointments have been made for later in the day.  I’m hoping I’ll be able to get her there this time and there is no repeat of Friday when Maureen went to ground rather than attend a medical appointment.

When we ran off to the seaside together 16 years ago we had no idea of the quality of services here.  I have recounted on several occasions the quality of support I get as a carer and Maureen positive experiences from all quarters.  Cleethorpes may be out of the way and relatives are a long way off but there is a lot to be said for living in this area.  It would be foolish of us to consider moving from an area which looks after us so well.

 

Dementia: Ten Days Respite Is On The Way

Ten days respite is on the way in a week’s time.  When Chloe our regular ‘sitter’ takes  annual leave we will ask the Care Agency not to send a replacement.  This will give us a further opportunity to reclaim our home and lives.  It will also give us a chance to see how we cope under our own steam

It was good to have Chloe back on the scene yesterday and catch up on her latest news: Maureen really enjoys having an opportunity to listen to someone else rather than me. Although yesterday was no different than normal with Maureen asserting that she would sooner be left by herself if I need to pop out for the odd hour.  What she forgets is that the bonus of having Chloe and Gail here is they are great at helping us keep our home in order. They are also well versed in supporting clients with dementia but it is possible that they could learn to be a little more enabling.

We popped over to ‘Tickerty Boo’ in the afternoon to buy some batteries for our digital camera.  Maureen used to enjoy taking photos and I’m hoping to encourage her to become a happy snapper again.  I will need to be patient as her eye sight and apprehension about new technology may well be barriers to this pursuit.

On our way home from our shopping expedition I nudged us in the direction of the lady at number 26 Fairway Court.  I have no idea what her name is but we have chatted to her on a few occasions.   Maureen had a ball in the company of this lovely lady who held her hand as she showed us around her garden. We must have spent half an hour with the residents at number 26 as Bert also came out to chat with Maureen for a short while.  It’s amazing how those who have troubles of their own are so generous with their time.  Bert had recently narrowly avoided a stroke and had to have an operation to disperse a blood clot behind his eye.

Late evening Maureen became very confused once again expecting my eldest daughter Lisa and her family to stay here.  She told me she had spent a long time preparing the spare bedroom for them to sleep in.  When I checked I could see no evidence of her endeavours.

I have been up very early this morning searching for Maureen’s wedding ring.  She told me she had taken it off yesterday and put it in a drawer because it was too loose.  I must have spent a couple of hours this morning looking in the obvious places without any luck: half an hour later I saw her putting it back on her finger having retrieved it from under her pillow where she had left it.  I just wonder if the missing engagement was left in the same place and is now under the bed: we’ll be investigating later

It’s a lovely morning in Cleethorpes and that always gets us off to a positive start on our journey.