Category Archives: General

Dementia: Car Crash Monday

 

When I phoned our Heating Engineer yesterday morning he pointed out it was:  ‘Car Crash Monday’.  I realised I was lucky to catch Dave, as his phone never stops ringing with callers wanting the problems of the weekend resolved as soon as he switches his mobile on.  True to his word, Craig, one of Dave’s engineers was here by nine and began his investigations into the problems with our boiler.

Maureen stayed in bed as Craig had to turn the heating off to begin his investigations.  She was still in bed when Chloe, our carer arrived.   They were holed up in our bedroom for a while chatting away like mother and daughter.  As I typed in the next room I could hear then catching up on events over the weekend.  Lots of further interesting events followed during the day indicate that Maureen’s recovery from stroke is continuing.

Around noon Maureen advised Chloe that she could go as she wanted to ‘sort out the remainder of the housework herself’.  A short while afterwards she held court yet again on ‘carers coming into our house and disrupting our lives’.  I listened and made supportive noises about it being difficult to know the amount of help we needed.  Later in the day Maureen had been thinking about the support we needed and I found her thoughts very interesting, as my dad would say.

I had popped out for some shopping and been away for about an hour.  Maureen had decided to have a rest rather than accompany me on my shopping mission.  When I returned I fully expected to find her asleep but she was in the kitchen making a hot drink.  She told me that she had been thinking while I was out.  I couldn’t quite grasp the whole of her thoughts but it was something along the lines of we didn’t need to go anywhere else as the ‘ladies’ (as she often calls the carers) could stay with her here if I needed to go to work or visit family:  so we didn’t need to go anywhere else.

I think it is possible that Maureen is asserting that she doesn’t need to go into care.  Her reference to not needing to go anywhere else might well mean that she is o k where we are now.  The positive in all of this is that I can pop out for the odd hour and she is quite comfortable to be left to her own devices.  How I make sense of her packing to go home, in a big way, later in the evening is another matter.  Quite simply, I can’t at the moment and I will just return all the precious items to where they normally go.

By the way we didn’t make the opticians.  Maureen decided that choosing glasses was better left to another day.  My second post of the day will attempt to recount a fascinating exchange that too place at 2.30 am this morning.  I think my dad would describe that conversation as very, very interesting!

Dementia: Solving Myopia and Central Heating

It’s taken two weeks but I’m confident there will be progress on Maureen choosing new glasses today.  She had her eyes tested two weeks ago but was too tired to choose new frames for the stronger prescription.  Her old glasses have now been missing for close to a month.  I think the crossword did it yesterday  and she is showing some interest in returning to Specsavers today.

I am hoping that I have removed some of the complexities of what Maureen needs to endure today: choosing anything is a major problem following stroke.  So I have suggested that she just chooses any old frame to get her by, and returns for a spare pair when she feels so inclined.  It could be another one of those occasions when the best laid plans doesn’t work out -time will tell.

The heating problem should be solved in the next hour or so.  As I type the heating engineer has our boiler on test.  It has been playing up lately and we want it sorted in case this cold snap becomes more severe.  This has provided an opportunity to be around this morning, and chat with our carer rather than leave her to tend to Maureen while ‘I go out and have fun’ as Maureen puts it!.  There are things that need to be reviewed in terms of carer support and I can start the process today.

So today starts the process of looking at things with a clearer focus for us all.  With luck we might even stay warm while we move forward on our journey.

 

Dementia: ‘Lazy Sunday Afternoon’

I can remember my dear father often using the title of this post.  I would often chat with him and he would say : ‘very interesting’.  I am sure it was a catch phrase from somewhere but I will always remember it as one of his sayings and gives me a lovely reminder of a great dad on this cold morning in Cleethorpes.

Yesterday was very interesting indeed!  Maureen was up by 9 am and in good form for the whole morning.  We had our breakfast together and commented on bird behaviour in the garden.  The good news being that  ‘Blackie’ is back – we think: a blackbird that responds to Maureen’s whistle.  We can’t be sure it’s him, only time will tell when Maureen ventures out and tries to feed him grapes!

The morning went well with Maureen assisting her Chef with preparation of the Sunday Lunch.  My new plan to be a bit tidier in the kitchen was appreciated by my humble assistant – possibly coach.  As always we larked about -even danced- to music  as we prepared lunch.  Music while you cook is always on the menu here.

After lunch we had an afternoon nap with Maureen grabbing a couple of hours of shut-eye.   On waking she was again keen to help with preparing our evening snack – ‘Lilly May Tea’: dedicated to her mother.  Apparently, her mum always steamed crumpets, so I carry on with the family tradition.

Following tea we did a couple of crosswords together.  One to be honest as we both struggeld with the clues of the second.  Our routine is I read out the clues and we take it in turn to answer.  Double points are awarded for silly answers – even more for suggestive ones!  Maureen tired as we both ran out of enthusiasm and decided to ‘close her eyes’ for a while.

Around 9 pm I tried to encourage her to go to bed and failed.  She said she was comfortable and it would be time to get up soon – obviously thinking it was morning.  So I decided to go to bed and woke a couple of hours later to hear her pottering about in the kitchen.   It took me quite some time to persuade her to join me in bed  but eventually I succeeded.

In retropsect I think we had a fairly normal day for a couple of our age.  It was cold outside, so we stayed in and had a restful Sunday.  I think the balance of  activity, stimulation and rest was about right.  It will be interesting to see what others think of  what the old folks got up to yesterday.

For the music lovers or ‘pop pickers’ I couldn’t resist this one: Lazy Sunday Afternoon

 

Dementia: Good Vibrations and Neuroplasticity

I think there were lots of good things about yesterday, alongside my luck running in 

Maureen and I had a normal sort of day for any married couple.  I didn’t ‘hop off’ as soon as Gemma arrived, so we had breakfast together and then carried out some basic household tasks.  When we work alongside each other the ‘old team’ is back on the pitch, and things run smoothly.  I generally spot when Maureen needs prompting and make the necessary supportive moves.

Whilst I was preparing lunch Maureen and Gemma got on like a house on fire.  I could here them chatting away as I made a winter warming soup.   When Gemma left Maureen said she liked Gemma- always a bonus with any carer!

My lunch time soup went down a bomb and I got high praise from my regular booking.  We always have fun around meal times as Maureen scores my creations.  The afternoon was difficult for the Nottingham Forrest supporter and she sat out my celebrations of the Sky Blues slamming Gillingham 4-1.

When Maureen is left to her own devices she tends to tidy up all sorts of things.  Sometimes she packs to go home and fills the washing basket full of precious items.  On other occasions she moves stuff around.  As I listened to the match she was in the bedroom and announced later that she had been tidying up.

As I celebrated the Sky Blues moving to the top of the table Maureen joined in with the high spirits.  She sang and danced to Joe Brown giving it his all on our Cd player.  When the moment was right we practised a routine or two from our dancing classes: being careful of course not to burn the evening creations.  My regular customer had requested omlette and chips – so my moves took on a new dimension.  I don’t think I would have got a ‘Ten from Len’ as we strayed into the slow fox-trot!

Following our evening meal I suddenly realised that Maureen had been on the go all day.  This was the first time for ages that she hadn’t had a nap or two in the day.  I joined her in bed shortly after nine at the end of a good day all round.

Who knows what today will bring?  All we can strive for is more Good Vibrations.  

Well we are off to a good start this morning with Maureen down at 9 am, making a further cup of tea.  It’s bright but very cold outside.  Maureen is not keen on driving south to see relatives, so we will stay local today.

If the going is favourable I hope we are able to walk to the local shops.  I am pretty sure Maureen can remember the way by now, and it won’t be long before she has the confidence to make the trip alone.  This will be such progress after her circuitous walks around the local streets, and eventually finding her way back home.   Maureen continues to demonstrate that she still has the capacity to learn.  It just takes a little longer following stroke and patience is vital when your goal is neuroplasticity

 

Dementia: Super Saturday

 

There is only one way of summing up yesterday: ‘Super Saturday’.  They say your luck runs in threes and yesterday it did.

Gemma our carer arrived on the dot at 10 am and provided superb support throughout her stay.  When you consider it was only the second time she had been here her performance could only be described as outstanding. Following a brief chat in our dining room she blended in as if she had been part of the furniture and fittings for ages.

Gemma is extremely intuitive and realised that Maureen was puzzled by a new kid on the block.  She therefore played a good card by offering to ‘pop to the shops’.  On her return she played another ace by ironing some bedding.  Then she slipped into the lounge to have a cuppa and chat with Maureen.  I am pleased to welcome Gemma into our support team.

With Gemma in the house I managed to scan the Internet for more resources on dementia and discovered Improving Dementia Education and Awareness (IDEA)  at Nottingham University.  What could be better than somewhere that is close by , at a University where I have been a student, and located in Maureens birthplace?

Later in the day things got even better.  As an avid Coventry City supporter I listen to matches live on Sky Blue Player.  Yesterday we beat Gillingham 4-1 .  It isn’t very often that I wake up on Sunday morning when the Sky Blues are top of the league.

The only dampner on this morning is that I have been woken up early once again by leg pain.  I have to start looking after myself a little more.  Those morning routines of Tai Chi and meditation beckon!

 

 

 

Dementia: Organising Our Days

This post has been lifted from a helpful Web Site and edited slightly.  I intend to use it as a guideline for planning our days, as I encourage others to help us review how our journey is progressing.  It is particularly pertinent after a rather challenging week:

Organising Your Day

Remember to make time for yourself, or include the person with dementia in activities that you enjoy – for example, taking a daily walk.

A person with dementia will eventually need a caregiver’s assistance to organize the day. Structured and pleasant activities can often reduce agitation and improve mood. Planning activities for a person with dementia works best when you continually explore, experiment and adjust.

Before making a plan, consider:

  • The person’s likes, dislikes, strengths, abilities and interests
  • How the person used to structure his or her day
  • What times of day the person functions best
  • Ample time for meals, bathing and dressing
  • Regular times for waking up and going to bed (especially helpful if the person with dementia experiences sleep issues or sundowning)

Make sure to allow for flexibility within your daily routine for spontaneous activities.

As dementia progresses, the abilities of a person concerned will change. With creativity, flexibility and problem solving, you’ll be able to adapt your daily routine to support these changes.

Checklist of Daily Activities to Consider

  • Household chores
  • Mealtimes
  • Personal care
  • Creative activities (music, art, crafts)
  • Intellectual (reading, puzzles)
  • Physical
  • Social
  • Spiritual

When thinking about how to organize the day, consider:

  • What activities work best? Which don’t? Why? (Keep in mind that the success of an activity can vary from day-to-day.)
  • Are there times when there is too much going on or too little to do?
  • Are spontaneous activities enjoyable and easily completed?

Don’t be concerned about filling every minute with an activity. The person with dementia needs a balance of activity and rest, and may need more frequent breaks and varied tasks.

Read more: http://www.alz.org/care/dementia-creating-a-plan.asp#ixzz3qh6gPwps

 

Dementia: Trigger Points for Trouble

Things have not been easy this week for Maureen or myself.  Her presentation and confusion has been challenging – to put it mildly.  She has also been exceptionally tired and prone to take lots of naps. There is little doubt that there have been triggers for the changes in her presentation.  I am not a believer in theories that suggest random activity from her injured brain.

On Monday evening it soon became clear that a reminder that she had forgotten a birthday of a close family member had caused immediate, and ongoing, distress. It was the only real memory she had of his phone call, and preyed on her mind the following  morning.  As her emotional memory is still intact it is not surprising that she thought ‘she was going mad’ forgetting the birthday of one of her nearest and dearest.

Yesterday, we stumbled into her Aunty Clarice and Maureen was plunged into her murky past.  Some old photographs had been passed on from the belongings of a relative who had deid.  This led to an hour or so of reminiscing.   Skeletons buried in the cupboard  came out into the open once again.  Therefore, it is not surprising that Maureen became distressed about the man in her bed last night.

We are all at the mercy of our memories.  When you have experienced stroke I am not surprised that you might think you are going mad, with things never being the same again.  You certainly don’t need clumsy relatives reminding you of your inability to recall dates that are important to them.  It is also obvious that if you have buried bad memories it is another occasion where it is preferable to let sleeping dogs lie.

It is unfortunate that many only see Maureen when she is in ‘hostess mode’.  Consequently,they have no idea how frightened and confused she can become.  Unless we can find a way of helping some people to become more Dementia Friendly the road ahead for us will continue to be very rocky indeed.

 

 

Dementia: Another Rude Awakening

It’s 5.30 am in the morning and Maureen woke about an hour ago and got out of bed in a distressed state.  She was very confused about lots of things: particularly about who is in her bed.  I am not going to quote her as I couldn’t possibly recall her words.  Basically she is wondering why strange men get into her bed in the night?  She is talking about the importance of having her own private bedroom.  If people in the Office can’t sort things out, she will go to the Press.

I have had to use all sorts of strategies to try to calm her down.  I am hoping that  she can get back to sleep, although I am concerned about the amount of rest she has needed in the last few days. No such luck for me: I need to reflect on what has gone on, and review my plans for tomorrow..

This morning we are back to Maureen’s fears about men in her bed.  Such concerns often arise and her fear is palpable.  They continue to haunt her when confusion about where she is in her life history surfaces.  Those who are familiar with events in her life understand the origins of her concerns.

I no longer think our plans for tomorrow are safe: Maureen’s presentation this week has fluctuated more than ever.  It is no longer sensible to leave Maureen to her own devices for  more than a short periods of time.  There have been too many instances this week when she has woken up and been totally confused. The sensible option is to postpone my visit to Coventry until we can review Maureen’s current presentation and plan accordingly..

 

Dementia: Many Hands Make Light Work

Listening and thinking has to be a priority for a day or two following recent developments. Maureen believed she was back in Nottingham for quite a period of time yesterday evening.  Then this morning following conversations about a trip to Coventry Maureen is wondering: ‘why I brought her here?’  There are also the constant grief related issues about her parents or two children who have passed away.

The simple plan today is to potter around the house and garden.  We will be trying to catch up on one or two outstanding tasks.  This will give us a chance to think about where we go next on this journey.

Fortunately I am well placed in the next few days to share my thinking on a way forward.  At some time today I may well wander around the corner to have a chat with Yvonna our helpful chemist.  Tomorrow I am meeting with Mel, my Admiral Nurse.  Sue our social worker is back on the scene next week and a chat with her is pending.  So many hands should help this Care Partner to continue with good work.

Dementia: Kay is More Than Ok!

I nearly made a silly mistake on Tuesday when Maureen was having such a difficult day.  As Gail our normal carer was on holiday I decided that a new face in the house wouldn’t help, so I phoned up the Agency and cancelled the call.  Later in the day,when I was on my knees from relentless challenge I asked for the call to be reinstated.

When Kay turned up shortly before 10am  I intercepted her on our drive.  I quickly marked her card on my ‘cunning plan’ for the day.  I explained that things had been difficult on Tuesday, and mood lifting was the order of the day.

Kay played a blinder throughout the morning.  She went along with the ‘lesson plan’ and even moved my aspirations to a higher level.  Within minutes of being here her rapport with Maureen was exceptional.  It helped that she had been here a while ago and she knew how to play Maureen.

Kay had two things in her favour that gave her a head start on other carers.  She is a grandmother and her maturity was a welcome relief for Maureen.  Kay is also a ‘Meggie’, a local, who went to the same Primary School in Cleethorpes as Maureen.  Once I left them too it they got on like a house on fire.

I got it right on two fronts yesterday morning.  Firstly, I went ahead with the call: much needed company after Tuesday!.  Secondly, I stayed around to set the scene, and popped in an out whilst catching up on some domestic tasks.  I have to thank Mel my new Admiral Nurse for the ‘staying here bit’.  As Mel said to me the first time we met: ‘I wouldn’t leave my cat with someone I didn’t know’.  Thanks for that one Mel – it helped to keep me on the straight and narrow yesterday!