Tag Archives: Good Practise

Dementia: Siesta Saves The Day

Maureen and I have just had a wonderful two hour sleep.  It is so hot in Cleethorpes today that we returned from our morning endeavours totally exhausted but relieved after a busy morning.

Dr Munjal does not think Maureen’s swollen tummy is anything sinister.  As always he was lovely with Maureen encouraging her from the chair to the examination table with great skill.  He has encouraged us to keep an eye on things and return if things don’t improve within two weeks.

Maureen did really well when we were on the Avenues.  She now has a birthday card for her brother and a smooth chin.  She couldn’t understand why the beautician knew her or had any idea that her dad had been with her in hospital following stroke.

It would be a bridge too far to take up Mark’s offer of an appointment to cut and colour Maureen’s hair.  Her hairdresser is someone else who understands dementia from the inside following a close family member having the condition.

Maureen has just saved the day by coming upstairs to tell me the oven is very hot: another few minutes and those potato wedges would have been ruined.  I’d better don my chef’s outfit and sort out a late lunch……

Dementia: Enjoying A Natural Break

A second post already this morning as I dont want to risk becoming ‘lazy’ like  Kate Swaffer.

Maureen and I took a break last night by wandering around Cleethorpes alongside groups of holidaymakers.  We often feel we are on holiday all the time here being retired and living by the sea after years of city dwelling.  At 8.30 pm last night the local ‘hot spots’ were in full fling.

The Beachcomber Holiday Park, a small caravan site, with all the trimmings of such venues is a short walk from our house.  We declined joining in with the revellers at a Dolly Parton Tribute Show but cast a glimpse of the 100 or so folk enjoying Country Music.  Then we ventured across North Sea Lane to see what was going on at Pleasure Island.

At 9 pm the rides are closed and if you listen patiently you can hear the Sea Lions talking to each other.  The entertainment hub was in full swing with a magician entertaining (deafening) lots of small children with his antics.  A casual enquiry at the bar confirmed that the Massai Warriors will be on tomorrow evening.  If things go well we will return to see their acrobatics this evening.

On our homeward journey we watched young children running around a play area at  what would be our local if we chose to eat at the local Carvery.  We stood for some time watching them run in and out the swings and slides trying to catch the leader within a minute.

I’m not sure if we will ever make a Winter Holiday in the sun again but Lisa my eldest daughter kindly shared her holiday in Portugal with us last week.   She knows it is one of our favourite haunts and sent us lots of photos to bring back such happy memories of Christmas in the sun.  Three of them are featured below:

 

Dementia: Moving Forward

My middle daughter says she knows where she gets her impatience from: I’ve suggested it must be from her mother my ex-wife.  Well Anna if you are reading this I have listened to you, and accepted that ‘slowly slowly catchee monkey’ can pay dividends.

My long awaited Carers Assessment has been rearranged for tomorrow morning at 10.30.  We are meeting in the cafe at Harrison House the local Mental Health Unit.  I often choose to meet professional staff there as it reminds me of the time I was Sectioned after taking far too many paracetamol a few years ago.

Harrison House is another example of the quality of Mental Health provision in this area.  NAViGO have established dedicated provision where skilled personnel work hard to help people like me to put their depressive episodes into context.

If time is on my side tomorrow I will drop off another pack of choc ices for hard working staff and patients.  Such natural remedies for depression can make all the difference when your life doesn’t seem worth living.  As my cyber friend Irving Kirsch has proved antidepressants are no better than a placebo for treating mild to moderate depression:

 

Dementia: Left Alone

Maureen left me last night as I remained on the lounge floor after she had been sleeping on the sofa.  The good news is she went upstairs and got into bed.  Its early days but that photo on the bedroom door might just be the answer to Maureen knowing where to sleep at night.  Once she climbs into bed she gains comfort from a pillow case that she believes her mum embroidered and a quilt cover with a similar pattern.  I sleep a partition wall away in the spare bedroom and hope to share tea in Maureen’s bed in the morning.

Dianne our new Carer has been a breath of fresh air making such a difference to our weekend.  She has a wealth of relevant experience as she has previously worked in a Care Home where dementia was prominent.  Her rapport with Maureen has been excellent and entirely person-centred.  It didn’t take me long to realise that Maureen would be well looked after and I managed some time out on Saturday and Sunday.  I will be in contact with our social worker this morning to try to make sure Dianne becomes a regular in our team of carers.

It was good to catch up with so many ‘Coventry Kids’ yesterday.  Our phone was in constant use, while Maureen had an afternoon nap, with chat about the ‘Sky Blues’ first match (defeat) of the season and the state of the nation.  It’s reassuring that extremely busy folk with complications in their own lives still find time to chat whenever I make contact: sincere thanks to you all.

Chloe one of our regulars will be here at 10 am and that will create an opportunity to make it to the Leisure Centre this morning for a little exercise and to enjoy the warmth of the Spa and Sauna.  It’s a while since I’ve been down that way and it will be good to catch up with some old friends.  One of the things that I miss now Maureen has dementia is an opportunity to talk about current affairs and there is always lively chat in the Health Suite.

Maureen will be pleased to see Chloe this morning as she thought Dianne was here to check up on us to see if there was anything for the authorities to be concerned about.  I suppose it is natural to be suspicious about any new face when you have dementia and fear that everyone is conspiring to lock you away and throw away the key.  Her suspicions are hardly surprising after the events of the last couple of weeks.

It looks like it’s going to be another long day as Maureen has been up since 3.30 am.  I need to take advice to see if there is anything more I can do to regulate her sleep pattern, as these unsocial hours take some getting used to.  The positive thing today is that at 5.30 am Maureen is laughing at herself after waking up from a dream that she is late for an operation to remove her appendix.  She has also remembered that she doesn’t have to go to school today.  Who knows what she will be thinking about after she finishes putting washing on the line as I close this post.

Dementia: Top Tips For Living Well

“Our Top Tips” to Living Well with Dementia – Scottish Dementia Working Group @SDWG

During the summer of 2015 the Scottish Dementia Working Group (SDWG) and Lynsey Robertson-Flannigan the Alzheimer Scotland Occupational Therapy intern formed a ‘Top Tips’ subgroup. The aim of this group was to co-produce a peer to peer resource of tips and strategies for people living with dementia.

The SDWG members have over the years collected strategies and tips which they have found useful in helping them to live well and independently with dementia. Their desire was to share this knowledge, enabling others to maximise their quality of life by being ‘all they can be’ (Dementia Skilled Improving Practice 2016).

Image of the group hard at work sharing their ideas.

 

The outcome of the group was to develop a resource of all their ideas. After a few brain storming sessions, a booklet of “Top Tips” was developed and the tips were themed into these areas:

At Home: Kitchen – Moving about your home safely

Out and About:  Using buses, trains and taxis – Car parks – Keys –  Staying safe and asking for help

Medication: Taking medication – Being away from home

In this week’s blog we are delighted to share with you a preview of the “At Home” section.

Kitchen our top tips to living independently

  • A note on the cooker could prevent you from becoming distracted while cooking, for example: “Do not answer the door or phone when you are cooking.”
  • Blackboard stickers or signs on kitchen cabinets can be a reminder of what is inside.
  • A timer can remind you that food needs to be checked or that it is ready to eat. A portable timer can be carried to different rooms of the house.
  • Using blackboard stickers or signs on kitchen cabinets can be a reminder of what is inside.

pic 2

  • Timers can be used to remind you to turn off appliances, such as the oven or iron. This can prevent fire hazards.
  • Having transparent kitchen appliances could make it easy to see when the kettle is boiling or if the toast is ready.

Reminders for information, dates and appointments can be used around the home in a variety of ways:

  • Laminated reminders
  • Labels
  • Whiteboards
  • Notice boards
  • Magnetic boards
  • Recorded messages
  • Labels on drawers can be a reminder of what is inside.
  • Post-it notes
  • Having a checklist at the front door. For example:

Have you turned the gas off?

Have you turned off electrical appliances?

Do you have your car keys / purse / wallet?

Is the back door locked?

Are the windows shut?

Remember to lock front door?

  • Calendars with large boxes to record appointments or diaries which have clearly separated days.

Printed reminders should be interesting to look at so that they catch your attention. Using coloured card or photographs can help.

Photo from dementia circles ideas

Moving Around Your Home Safely

  • Some local authorities can provide useful services to promote safety in the home. These can include a wide range of community alarms or alarms which make a sound when you leave your house.
  • Trip hazards can be reduced by painting the last step in a contrasting colour. This can make it clearer where the stairs end.

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Being involved in the development of ‘Our Top Tips to Living Well with Dementia’ has been a real pleasure. We have almost completed the booklet and hope to have it available in the next three to four months.   We hope that the tips included within this leaflet will be of use to people with dementia now and for many years to come.

The Scottish Dementia Working Group are aware that these are the strategies that they have found to be of benefit although they may not work for everyone.

It would be great to hear from you on other effective “top tips” you use already? or have you seen any of these ‘Top Tips’ used and were they of benefit? and would you include any further sections?

pic 7

We need to say a thank you to all the members of the SDWG for their ideas and suggestions as well as to Lynsey Robertson-Flannigan, Susan Burn, Fiona Gordon and Rachael McMurchy for their support and advice.

Footnote: I’m beginning to think that my cyber friend Kate Swaffer is telepathic as she has posted the above on Linkedin and it is the very framework I need to help move out of self-imposed Special Measures.  That’s another hug I owe you Kate!

Dementia: 3 Ways to Redirect

More excellent advice from the Alzheimer’s Reading Room:

‘3 Ways to Redirect a Dementia Patient and Embrace Reality

 Some caregivers find it difficult to redirect Alzheimer’s patients – why not try these simple methods?
Caregivers find it difficult to redirect Alzheimer's patients, why not try these methods?

By Bob DeMarco
Alzheimer’s Reading Room

Learning how to redirect an Alzheimer’s patient is often difficult. The concept itself is difficult to grasp.

Learning how to embrace the reality of a dementia patient is also difficult.

Learning how to redirect a person living with dementia and how to embrace reality are essential components of effective caregiving.

Learning how to do this takes patience and a little practice.

When ever possible you should include these two nonverbal communication techniques before redirecting.

First, if close by take the person living with Alzheimer’s Hand. Second, make sure you have their attention and smile. Also, try to respond in a steady voice.

1. I’m hungry, I’m starving

My mother would utter those words over and over every day. In the beginning I would inform her that she had just eaten (often true), that she could not possibly be hungry, or she had already eaten 3 times that day.

What I failed to realize in the beginning was my mother: could not remember she had just eaten, could not remember what she had eaten that day, and that, in fact if she said she was hungry – she was hungry.

I failed over and over in the beginning to embrace my mother’s reality. If she said she was hungry – even right after she had eaten – then she was hungry. Who was I to determine how she was feeling? Aren’t we all entitled to our own feeling, or for that matter beliefs.

Whenever I chastised my mom and told her she couldn’t be hungry it usually ended in a horrible episode. My mom would go into her room and refuse to come out. I would be left alone feeling bad, and having a bad day.

Then one day I discovered the solution by accident. Dotty said, “I’m hungry, I’m starving.” I looked at her smiled and said, “okay, can you give me ten minutes to finish what I am doing and we will eat”. She smile back and said, ‘okay”. That was that.

She didn’t ask again and seem satisfied with my answer. I had embraced her reality, and that was what she really needed.

You might be able to use this form of redirection in any number of situation. Smile and embrace the reality. You might be able to get away with one word – okay.

How to Get Answers To Your Questions About Alzheimer’s and Dementia

2. The distant and no longer past as reality.

My mother did this one over an over with my sister but never with me – go figure?

My mother would tell my sister that she wanted to get Volkswagen (VW) fixed so she could start driving it.

The VW in question had not been around for 30 years. It no longer existed. On top of that, my mother was no longer driving and had not driven in many years.

My sister would smile and respond in her normal voice, “okay, let’s do it tomorrow”. Close enough to the 3 little words rule.

My mother would accept this with out question.

In this example my sister embraced my mother’s reality. That the VW actually existed, and she offered a solution. However, my sister would not address the issue of “driving”. She knew my mother was no longer driving, and, had learned it rarely works when you correct a person living with dementia.

In this example, a bit more complex there are 2 issue. A car that no longer existed and driving. My sister embraced the key issue, and resisted the urge to inform my mother she was no longer driving – she realized it really didn’t matter.

3. Use the Hook

Sometime my mother would do or say something that was not really conducive to redirection. In these cases I learned to use the “hook”.

I might say out of the clear blue sky, mom, why don’t we have some potato chips? This worked every time. My mother loved potato chips.

I had other hooks. For example, would you like some ice cream? Answer every time, yes.

And sometimes I would just change it up completely. Mom, let’s go to McDonald’s and get some french fries. I used examples like this one when my mother seemed to be getting – very negative. I wanted to get her of the house and into some bright light – or just plain out of the house for a change of mood and environment.

I learned over time how to listen to my mom. Once I made it to Alzheimer’s World I learned how to accept that what she was saying was true – it was true to her. I no longer had an incessant need to correct her.

It was no longer all about me, it was about her. Whatever was happening in her world was in fact reality. So even though it took me a long time to embrace her reality, once I did I felt a lot better. Calmer and happier.

Over time I learned how to keep it simple. It seems “simple” really works well in Alzheimer’s World.

Touch, Smile, be Patient, don’t be Judgmental and somehow, someway, life starts improving.

As I write and think about this I continue to be amazed that if you try real hard – it doesn’t work well. If you keep it simple and easy – it does work well.

It now seems to me that it should be easy to learn how to redirect, and how to embrace reality – it isn’t. But once you do, you can then look in the mirror and laugh at yourself. That is exactly what I did’.

I am about to Email this post to Maureen’s eldest son as he will be on his way to visit us soon.  I hope he finds the above helpful because her presentation has changed so much since he last saw her 

Dementia: Our Camp Song

News from Base Camp – this is the Camp Song played as early morning tea is served:

Maureen has asked me if the children are enjoying camping along with whether I’m warm enough at night.  Camping is giving me much more rest as I lie on a mattress close by heron the sofa soothed by the sound of Maureen’s breathing.  If she wakes distressed a few words of comfort from me ease her back to sleep.

We are both really excited today as we picked our first crop of home grown kidney beans yesterday.  Our Sunday Dinner will be really something today; with an even greater array of vegetables to go with a slice of chicken.

It’s great weather for camping today in Costa del Cleethorpes – a warm day with lots of blue sky on the horizon.  Maureen is still cold even though she is wearing two pairs of thermal socks toasted by the gas fire on low heat.

I think my attempts to help Maureen rebuild her confidence are paying dividends as there are signs of a spring returning to her step as she moves around the house and the garden.  There is a saying that ‘adult eduicators never retire they just go grey’: white in my case.  How lovely to see that I’m still up to the job by  helping Maureen with her struggles to keep Mrs Dementia at bay.

 

Dementia: Person-Centred Care Personified

I arrived at Maureen’s Care Home this morning to find her with a black eye, a cut on her nose and pains in her back.  Her account of what happened does not tally with the information I was given by care staff.  When I attended Maureen’s Review Meeting I was told she has moderate to severe dementia and staying in the home could exacerbate  challenges from her presntation..

Maureen is now home and sleeping on our sofa with the blessing of the Home Treatment Team.  It will take me a while to secure a Care Package to protect our well-being: getting Maureen home has been the priority.

For years we have not bought each other birthday presents as our motto is ‘ your presence is my present’.  On Maureen’s 78th birthday today’s action may just take the biscuit and she has just had four with her ‘first decent cup of tea for days’!

Dementia: I Count My Blessings

Apparently Friday is always a busy day for our Home Treatment Team: today has been no exception.  They arrived as scheduled at 5 pm and an hour later Maureen was quite happily going with them to a local Care Home where they have dedicated beds for assessing clients.  I checked the place out this morning and selected Maureen a room with a good view of the gardens.

It has helped that two of Maureen’s aunties have similar infections and she is keen to avoid problems with her kidneys.  Staff from the HTT visit the Home every day and will advise me how things are going and when it is sensible for me to visit.

As always I count my blessings that we enjoy such excellent support in the Grimsby and Cleethorpes area.

Dementia: Bribery and Corruption?

On Monday I made a mistake and turned up an hour early for a physio appointment, so I went off to do some shopping.  I joked with the receptionist that I would bring her an ice cream on my return.  She was rather surprised when I returned with a pack of six.  It was a small way of saying thank you to staff at St Hugh’s Hospital for the treatment I have received  over the years.

Harrison House, the local Mental Health Unit, is across the road from St Hughs and I decided to drop them off some ice cream as a thank you for helping me to recover from a period of feeling suicidal some years ago.   They were delighted with my offering and I joked with staff that I thought they might be better than Prozac on such a warm day.

This afternoon I am due to see our G P and I hope to extend my efforts of ‘bribery and corruption’ to staff at our Medical Centre.  I also plan to do the same at our local Pharmacy who have already been trying to persuade Maureen to take her antibiotics this morning.

It is lovely to be able to help staff cool off in this hot spell as we show our appreciation for the sound support we receive from so many quarters in Cleethorpes.