Category Archives: General

Dementia: Mandatory CCTV In Care Homes: ‘Its A No-Brainer!’

My cyber friend Jayne Connery is absolutely right CCTV should be mandatory in Care Homes.  This is not jumping on the bandwagon it is based on the experiences of Maureen and my brother.

Maureen was 78 on July  the 26th of this year.  I was shocked when I saw her condition as  I arrived at Ladysmith Road Care Home to wish her happy birthday: she had a black eye, a cut on her nose, and was complaining that her back hurt her. She told me that she had been pushed by staff on a trolley that collided with a door.   Care workers said that she had fallen out of bed. My concerns were raised even further when I attended a Review Meeting later in the morning when I was asked if Maureen often barricaded herself in a room and went to sleep on the floor.

I removed Maureen from Ladysmith Road very shortly after the Review Meeting as the medical opinion was that she was likely to deteriorate rapidly in this setting.  Once we were home Maureen continued to complain about back pain and the bruising on her face was becoming more prominent.  I became concerned that internal bleeding was taking place and took her to Grimsby Hospital.  Following examination and X-rays, she was discharged.  The examining doctor expressed surprise that she had not been brought to the hospital earlier.

When I raised my concerns with the Manager of the Care Home she stuck to their story: ‘she had fallen out of bed’.  She also advised me ‘Maureen had  only have been asleep on the floor of the small lounge for a short period of time’.  We will never know what really happened without CCTV.

One final point the Manager of Ladysmith Road told me that they had been encouraged to reduce admissions to A and E .  However, if a resident is on blood thinners has fallen and bruising is continuing that is another ‘no-brainer’

 

Dementia: Respite At Last!

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We all gave it our best shot yesterday morning trying to persuade Maureen to go into Ashgrove Care Home.  Gary our social worker, Gail our carer along with myself talked the talk but her arguments for staying at home from the day before were repeated.  Just as we were about to call for support from the Home Treatment Team Gary suggested that I could just ‘rock up and drop her off’ telling a ‘Love Lie’ that we were just popping into Ashgrove for a cup of coffee.

Gail and I took Maureen for a walk around Cleethorpes Country Park and popped into Ashgrove on the way back.  Once we were inside staff were primed to settle Maureen so Gail and I could beat a hasty retreat.

Maureen will stay in Ashgrove initially for a week .  I will not visit during that time as I know they will contact me if needed.

My priority during this break is to attempt to sort out my sleep pattern.  I have decided to do this by sleeping in my own bed rather than visit Madyhamaka Buddhist Meditation Centre.

Last night it was  strange being in the house without Maureen.  Music added a feeling of familiarity to my surroundings.   When  I played the first side of The Sound of Music I could have sworn I heard my ‘Singer Lady’ holding forth.  Once I sat down to eat I counted my blessings for the excellent support I had received from professional staff and family members throughout a challenging day.  As I stared at the empty place next to me I  knew that the means justified the ends: Maureen would be well cared for and I would get the rest I needed.

Just for a change, I have updated my Good Music page on time today.  With  Remembrance Sunday around the corner there one contender. I will always be grateful to Izzy, one of my many friends from my days on Talking Point, for making me aware of this song.

 

Dementia: Refusing To Go Into A Care Home

Image result for I WANT TO STAY IN MY HOME DEMENTIA PICTUREMaureen asserted throughout yesterday her right to remain at home.  Despite various attempts to ease her into Ashgrove Care Home, she was adamant that she wanted to stay in her own home.  As she said: ‘I’ve done nothing wrong, I’m not a criminal: you can’t make me go anywhere’.  She also said that if I was struggling to sleep, I was the one who needed help and should move out to allow her own family to look after her.

There is no doubt that Maureen remains a very intelligent woman, able to use logic and rational thought.  Her arguments for staying in her own home were perfectly  understandable considering her experience of Care Homes.  I had to remove her from Ladysmith Road bruised and broken on her birthday.  She escaped from Royal Court and Ashgrove as she hates being locked in anywhere.  Her faltering short-term memory means that she can’t remember the details of her incarceration but the scars are there in her emotional memory.

Maureen was afraid to go into a deep sleep last night for fear of being taken away.  She is now worried if I’m out of sight.  Therefore, we have to be very careful this morning to ensure that our next moves don’t push her over the edge.  Despite being exhausted I intend to help Maureen hold the line on staying in her own home.  There is no simple solution to the current impasse but I will not collude with any plans to deprive my wife of her liberty.

Although I’m exhausted and would love to be enjoying planned respite, I intend to help Maureen hold the line on staying in her own home.  There is no simple solution to the current impasse but I will not collude with any plans to deprive my wife of her liberty.

Gary our social worker will be here this morning.  It is his turn to try to move things forward.   Sue from the Home Treatment Team could get no change out of Maureen yesterday, despite her success a few weeks ago.  After more than half an hour she recommended backing off to avoid further distress. As Sue left, she commented how much Maureen had deteriorated  since her last visit: don’t I know it!

Dementia: ‘It’s A No Brainer’

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Quality sleep has become impossible in the last few days, as you will see from this page, and I’m worn out.  Following advice from Marie of the Home Treatment Team, I have made arrangements for Maureen to go into Ashgrove Care Home this morning.  My initial thoughts were to seek a short break but after another night of Maureen being in and out of bed, I hope to extend it beyond a couple of days.

The dangers of poor sleep are well documented and Carer Burnout is around the corner.  It may well be that medication or some significant changes in our routine are necessary to help solve this one!

Once Maureen is safely in Ashgrove I’ll be on my way to Madyhamaka Kadampa Meditation Centre (pictured above).  The peace and tranquility of such a setting are just what I need at this moment in time: ‘it’s a ‘no-brainer’ as Kelsang Dorde ( far right below) would say.

Cheers Dorde, it’s your round when I get up there this afternoon!

Dementia: Well Deserved Recognition For Kate Swaffer

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Great news today that my cyber friend Kate Swaffer has got deserved recognition for her exceptional work:

Australian of the Year

STATE FINALIST

State: South Australia

State Finalist Australian of the Year 2017

Kate Swaffer

Dementia advocate

A humanitarian, advocate and activist for people with dementia, Kate Swaffer was diagnosed with the disease in 2008, just before her 50th birthday. Refusing to be defeated by the diagnosis, Kate has helped redefine the way the world views dementia and has driven improvements to services and outcomes for the 354,000 Australians currently diagnosed. Since then, Kate has completed three degrees and is currently undertaking her PhD. As Chair, CEO and Co-founder of Dementia Alliance International, Kate is a voice for the 47.5 million people worldwide living with dementia. She sits on numerous committees and councils, and was the first person with dementia to be a keynote speaker at a World Health Organisation conference. An accomplished author, Kate has written a number of books and articles, including What the hell happened to my brain: Living beyond dementia. By transforming tragedy into triumph, Kate is changing society for the better and showing others how to lead remarkable lives despite the obstacles.

Dementia: Rescued By South Pacific

I had to resort to old technology to rescue Maureen from her kidnappers this morning.  YouTube was down due to technical difficulties so I hastily put on a compact disc of South Pacific.  Once we got to the ‘Dites Moi’ Maureen started to sing in French and I knew I was settling her into the present.

As Maureen lay down to have a rest she mentioned that ‘her memory had been playing up again’.  She looks terrified in these moments of self-awareness; struggling to understand that her memory issues are not resolved.  It is something that she needs to explore a little further and I’m hoping that Marie from the Home Treatment Team will be here this afternoon for the walk that was promised on Friday.

I think it is likely that Maureen will forget the detail of anything that Marie tells her about her faltering memory.  She may also decline invitations to attend activities that might help.  However, I’m sure she will recall walking in the fresh air with good company: two things she always enjoys!

 

Dementia: Kidnapped

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Maureen woke at 3 am  convinced that I have kidnapped her and brought her to this cottage against her will.  She has been in tears struggling to understand my thoughtless behaviour.  It’s all hands on deck at the moment as I try to reassure her she is safe and will be able to go ‘home’ soon.

Dementia: Enjoying Being Nana

Image result for Enjoying Being NanaMaureen had a lovely time yesterday being Nana to her  grandson.  She was in her element as she talked and walked with Jack.   We often wish we lived nearer to our respective children; sometimes regretting our decision to move to Cleethorpes.   All of our immediate families are over two hours drive away and their busy lives mean that we don’t see them that often.

When Maureen is ‘wanting to go home’, she often says she want to be with her family.  She also says she misses all of the friends who live ‘back home’.  Unfortunately, both of us have lost touch with many of our friends and work colleagues from our days in Coventry. In addition, several of Maureen’s elderly relatives who lived in this area have passed away in the last few years.  Therefore, it is quite understandable that feelings of loneliness often dominate Maureen’s thinking.

There is no simple solution to Maureen’s loneliness.  Moving closer to family would not be a sensible option, as familiar surroundings are vital at this stage of her dementia.  We would also miss out on the quality support available in this area.  What I need to do is  ensure that we continue to have a steady stream of visitors to address Maureen’s  loneliness.

Last night I made contact with Ian Maureen’s eldest son and suggested he brings one of his children with him on his next visit.  This morning I have reminded Maureen of the fun she had yesterday with Jack and suggested that we invite grandchildren to help her decorate the Christmas tree once again.  I’m hoping by constantly reminding her how much our grandchildren love visiting Cleethorpes it will bring back happy memories from the past.

Maureen has been struggling to work out who I am this morning: she has been telling me  how strange it is that ‘Paul’ also likes herbal tea, along with constant references to ‘granddad’! Recognition may return following Chloe’s arrival: when  I will go out as the fellow who provides breakfast and return a couple of hours later as the husband who cooks such wonderful lunches.

 

 

 

Dementia: Communication Breakdown

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It was fortunate that I kept the lounge curtains open last night, as I managed to see an elderly lady walking tentatively down the road.  When I opened our front door I saw it was Pat, who told me she was ‘on her way home as there were footballers in that house’.  I encouraged her to come across the road and have a chat with Maureen.   I thought two would be company and with my understanding of dementia I’d be fine: nothing could have been further from the truth.

Usually, Maureen is pleased to see Pat and they chat together quite happily.  I edged Maureen into the kitchen to explain that I needed to summon help but she scolded me and eventually retired to bed.  Pat looked totally bemused by proceedings but didn’t seem concerned about Maureen’s whereabouts.  Once she was settled in the warmth of our lounge I summoned telephone help with calls to  HICA (Pat’s Care Agency) and Single Point Of Access.

Bradley Pat’s grandson arrived after half an hour; thanked me for my help and took Pat back to her bungalow.  I had tried to chat to Pat whilst we sat and waited for Bradley but could make little sense of her responses.  In fact, I had no idea what she was talking about for most of the time.  It is possible that I’d forgotten the basics of how to communicate with someone with dementia; thinking that the lingo that I use with Maureen would be the ticket.  If only I’d recalled the tips above from Alzheimer’s Care Resource Center things might have been different.

My experience last night reminded me of the saying that: ‘ when you have met one person with dementia: you’ve met one person with dementia.’ It may also be helpful to add that: ‘two people with dementia are not always company.’

Dementia: A Significant Distraction

I was running out of gas yesterday afternoon as Maureen continued on her mission ‘to go home’.  As soon as I arrived back from shopping she was on the case moving our belongings from the house to the car.  Nothing seemed to shift her from sorting out what we needed to take with us, and what could be left behind.  I tried every trick in the book to distract her but even the prospect of lunch failed: ‘she wasn’t hungry’.

Maureen waited patiently as I ate some soup and was then off again.  Fortunately, I knew that if I played for time reinforcements were pending. Marie from the Home Treatment Team had phoned earlier in the day to say that she would be with us around 2 pm.  During a break in proceedings, I managed to get a message to Marie about Maureen’s current presentation.  When she breezed into our house she had Maureen in the garden within minutes, putting our washing out on the line.  I needed a breather after a busy morning so I cycled to a nearby post box to send some mail.  Laughter greeted me on my return as Maureen and Marie foraged in our garden.  I left them to it and retired to my office in our box room.

Marie stayed with Maureen for over an hour.  I popped downstairs occasionally to make the odd intervention or join in with the laughter that was a constant feature of their intercourse. As Marie’s visit drew to a close she mentioned that she would return next week to go out with Maureen for a walk.  She also mentioned that it would be helpful if I could find out if our social dancing group was still taking place.

Maureen was very animated  following Marie’s visit.  She was clearly excited about being in Marie’s company again.  In fact, Marie dominated her thinking and conversation until she admitted she needed to rest after such a busy afternoon.

The Home Treatment Team have come to my rescue on many occasions since Maureen’s diagnosis of dementia.  I’m reluctant to single anyone out for praise as they are a team of professionals who are highly skilled at crisis intervention.  Yesterday Marie, like many of her colleagues, was able to distract and redirect Maureen to good effect.  How fortunate we are to have such a skilled team available to us: providing person-centred care to support us staying together in our own home.