Tag Archives: Tiredness

Dementia: Thank Goodness It’s Monday

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This morning I have the opportunity of reviewing how things are going with Girl Monday.  She is our longest serving carer and is used to dealing with the fluctuations in Maureen’s presentation.  However, she has been on holiday for a week and even she may be taken aback by what she sees this morning.

Maureen had a lovely few hours with her son and granddaughter yesterday.  It is possible that we encouraged her to do too much and tiredness could explain the dreadful night that followed.  This morning she has returned to the theme of her memory:  she is either terrified by what she can’t remember or resorting to a reality that would not be shared by anyone else.

As always I have no idea what is behind Maureen’s presentation and when it is opportune I will attempt to rule out any medical issues.   My guess would be that panic is a factor induced by compassionate confrontation from the Care Coordinator, and myself, that denial is not helping Maureen to make the best of her life.

Footnote: Received a phone call at 9.30 am to let us know Girl Monday is ill.  Have advised the Care Agency not to send anyone else as a newbie would add to Maureen’s confusion.

Dementia: It Feels Like Flu

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I am feeling much worse than yesterday as it becomes a struggle to stay on my feet.

Maureen may well be just the same as when she is not sleeping her confusion is rampant.

Thank goodness Lynne will be here at noon to prepare some lunch.

I have asked for a tea time call to help us get through the day.

We never thought about times like this when we ran off to the seaside together!.

Dementia: Seeking A Best Interest Decision

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I contacted Single Point of Access -Focus at 2.30 am to request a Best Interest Decision this morning on her future care and accommodation needs .

Maureen has kept me awake for most of the night because she has an infection.

I will seek an appointment with her GP this morning to try to prevent a heavy cold becoming something more serious.

A home visit may well be necessary and will be available if needed: we can always depend on Clee Medical Centre.

Our social worker is not working today so I have requested the Duty Manager to facilitate the Best Interest Decision.

To put it mildly, I am rather tired: no Care Partner can sustain being on duty 24/7.

Footnote: Posted a little earlier this morning in a quiet moment as Maureen sleeps.

 

 

Dementia: Sleep Disturbance

Image result for Sleep Disturbance In Dementia PicturesLast night Maureen woke three times during the night.  At 2 am she needed a drink and thought it was time for breakfast.  At 4 am she couldn’t stop coughing until I’d found her something to ease a tickle in her throat.  Two hours later she was concerned that the ‘little boy that she was looking after felt sick’.

Over the last couple of months I have picked up that there are initiatives, and research, in the pipeline that may help those with dementia and their Care Partners improve their sleep patterns.  The Manager of the Home Treatment Team and an Officer of the Clinical Commissioning Group have both mentioned relevant local initiatives.  The  Alzheimer’s Association have also commissioned research into sleep deficit within Care Homes.

In the next few days I hope to see if there is anything out there that might help the situation here.

Dementia: Preventing Carer Burnout

Image result for Preventing Carer Burnout PictureI’m back home after a very refreshing break at Madyhamaka Meditation Centre in Pocklington.  Being out of the firing line of dementia has given me an opportunity to recharge my batteries and think about how to avoid Carer Burnout.  Good fortune led me to choose Ashgrove Care Home as Maureen’s holiday home.

If Chloe, one of our carers, had not given positive feedback on Ashgrove I would not have gone near the place, as it had been in Special Measures.   That would have been a mistake: as any perusal of Ashgroves latest CQC report will show the improvements that have been made at all levels. My experience since the first time I stepped through the door has been equally positive, and I have no doubt that Maureen remains in good hands.  Ashgrove has now become a serious contender for preventing Carer Burnout with; Day Care, overnight stays, and substantial periods of respite becoming distinct possibilities for the future.

As my good friend Kelsang Dorde would say: ‘its a no brainer’

 

Dementia: What A Clanger!

I was rather tired yesterday after being woken at 2 am and not being able to get back to sleep.  This led me to try to catch up on sleep with an afternoon siesta.  Unfortunately I was woken an hour later by Maureen shouting: ‘this place is like a scrap yard’.  She was right – in every room and the garden I had left evidence of my half-finished endeavours.  I soon got my deserved reward with clothing and insults hurled in my direction.  The irony of all this is that I had been chatting to Chloe in the morning and she had reminded me how important it was not to add to Maureen’s levels of confusion: I would have got a University First in return for my efforts yesterday.

I have great respect for Chloe’s understanding of Maureen’s dementia.  She has had years of experience of working with clients who have the condition and  personalises her approach to Maureen’s care.   I have learned a lot about how to be an effective Care Partner by Sitting next to Chloe’: yesterday I failed to heed her message and created confusion.

I hope I have got the message now and will consider whether my behaviour is likely to add to Maureen’s confusion.  Lying in bed with clothing hurled in your direction certainly gives you food for thought.   I’m not sure I dare mention this to Chloe or she might think there is little hope for her apprentice!

Dementia: Creating Purpose and Routine

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It is never easy as a Care Partner to know if your approach is helping your loved one. However it doesn’t take you long to realise when you have made a mistake as there is no quarter offered by ‘Mrs Dementia’: she soon lets you have it with both barrels when you get it wrong.

I have made some progress in the last couple of days in helping Maureen find purpose in her life.  On Sunday I kidded her into going to Nottingham to support her brother and try to lift his mood.  Maureen warmed to this theme as she is a natural nurturer and I reminded her off her good works throughout yesterday whenever the opportunity arose.

Yesterday I encouraged her to follow the tradition of Monday is wash day and change our bed linen.  When I returned from a shopping expedition there was a line full of washing and Maureen had been spruced up in the shower.  Then I dropped a clanger asking if fresh linen had been put on the bed.   I soon got my come-uppance as Maureen refused to help our carer follow my hints about further tasks.  As Chloe said ‘she doesn’t like you telling us what to do’.  Later in the day I paid the price for another silly mistake.

Mike my neighbour asked if he could put his car alongside ‘Maureen’s’ on the drive.  When she awoke from her afternoon nap she was very distressed about our drive doubling as a car park for Mike’s car; particularly as it obscured the vision of her motor.  It also gave her a further opportunity to become frightened that strangers were always visiting this place.  I hastily asked Mike to remove the offending vehicle and return ours to its rightful place in the middle of our drive  As you will see from the photo, our car, Maureen’s beloved Space Star is now home alone in its rightful place in the centre of our drive.

On Friday I became so concerned about Maureen’s presentation that I arranged a check- up for her this morning.  She is sleeping a lot lately and plagued by an extremely sore mouth.  I managed to make this a joint appointemnt yeaterday so I can also discuss one or two matters of concern of my own. I know that ‘Rav’ (Dr Munjal) will pull out all the stops to see if there is anything he can do to make our lives just a little easier.

Personal reminder: Maureen has been a new woman with purpose in her life but any changes in routine can knock her for six. 

I’ve just remembered a helpful suggestion from a Mental Health Nurse during one of my periods of depression.  He said ‘never go to bed without some idea of how you are going to spend the next day’.  His advice along with support from various other people helped me to find my way out of recurring periods of anxiety and depression.

From now on I will list some possible tasks for the day at the end of each post to try to ensure that we don’t get lose our way on this challenging journey.

Today’s Tasks

  • Attend medical appointments for  health assessments.
  • Make dental appointments.
  • Sort out better arrangements for storing spare bedding.
  • Continue to de-clutter our house.
  • Print photographic reminders of how we spent yesterday.
  • Continue to potter in the garden.
  • Stick to established routines.

Great News: I’ve just had an amazing find – the missing bread knife that belonged to Maureen’s grandmother.  As I gave the bathroom a much needed early morning clean I found it safely tucked away behind the sink.  Now if only I could find the missing butter knife: also precious for the same reason.

Wow the latest search has revealed a key, sharp knife, Maureen’s distance glasses and bus pass all safely stashed away in the pocket of her fleece hidden from view in a wardrobe in the spare bedroom. It’s only a matter of time before I come across Maureen’s engagement ring, our address book and the remaining missing key.  They don’t call me P C 70 for nothing: I’ll make the CID at this rate!

Dementia: A Day Of Emotional Turmoil

Yesterday was a very tough day for Maureen.  The early morning proved very difficult for her as she struggled to cope with grief about her daughter.  I didn’t get chance to talk to Chloe before she moved on to her next call but I gather she didn’t have a easy ride here.  On my return from meeting Ed Maureen often looked stunned as she tried to find something to fill her time.  Prior to lunch she wandered around the garden looking lost.

The afternoon and evening didn’t go according to plan as a difficult day progressed.  Maureen was far from her normal self and seemed more unsettled as the day progressed.  She awoke from ‘resting her eyes’ shortly after 9 pm and I guided her towards turning in for the night.  Major upset followed as she prepared for bed with sobbing about ‘wanting to go home’.  Once again she was wondering where ‘the other girls were’ to keep her company in bed.  To reassure her I made it clear that I would be in the ‘boys dorm’ next door.

I’m hoping that rest will lead to positive changes in her presentation tomorrow.  It seems to me a quiet day will be in order with yours truly staying close at hand to provide support when needed.  What an unforgiving, and exhausting, condition dementia is with its relentless demands on this very tired couple.

It looks as though rest has been the cure as we’ve got off to a positive start today: hence this morning’s later posting.  Blogs are not the place to share too much information!

 

Dementia: Learning From An Old Hand

I have always seen Maureen’s Aunty Clarice as an excellent reference point in the steep learning curve that I have needed to traverse in becoming a Care Partner.  She is a veteran in the field, as her late husband had Alzheimer’s for approaching 20 years. Her other asset is that she has known, and been close to, Maureen for a very long time.

Clarice was clearly taken aback by Maureen’s demeanour yesterday.  I think she perhaps saw breakfast/lunch in bed after noon as decadence.  When she joined us in the bedroom she was taken aback by Maureen continually asking her the same questions.  Then she was disappointed Maureen’s reluctance to join us downstairs.

It didn’t surprise me that Clarice was shocked by Maureen’s presentation.  Only those who see her day after day have any idea of the marked decline in her condition.  Tiredness seems to be a regular feature of her presentation, and that poses a dilemma for me as a Care Partner.

There is a commonly held view to ‘let sleeping dogs lie’.  That has been my approach in the last few days: to let Maureen recover from her marathon on Sunday.  The risk factor in that strategy is that whilst rest may well be needed; functional capacity may well be lost.  Unless Maureen keeps up her daily routines she will forget how to carry them out. This may well leave her with limited capacity to do anything other than clean the work surfaces or put away the pots and pans.

Even in her grief Clarice continues to provide excellent support and advice as I try to support Maureen.  I have learned so much by watching her in action and chatting over her journey since Alzheimer’s entered her household. She still feels guilty about Dennis ending his life in a Care Home.  I hope my words of comfort helped this extremely generous woman as much as she continues to support us both.